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Open AccessFeature PaperArticle

The Measure of the Family Caregivers’ Experience

1
Health Psychology Department, Universidad Miguel Hernández de Elche, Comunidad Valenciana, 03202 Elche, Spain
2
Programa Pacient Expert Catalunya®, Programa de Prevenció i Atenció a la Cronicitat Direcció General de Planificació i en Salut, Departament de Salut, Cataluña, 08028 Barcelona, Spain
3
Servei de Valoracions, Sub-Direcció General d’Atenció i de Promoció de l’Autonomia Personal Direcció general de Protecció Social, Departament de Treball, Afers Socials i Famílies, Cataluña, 08019 Barcelona, Spain
4
Osakidetza, Servicio Vasco de Salud, País Vasco, 01006 Vitoria-Gasteiz, Spain
5
Consultora de Políticas Públicas y Gestión de Organizaciones, Castilla la Mancha, 45112 Toledo, Spain
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Merck Sharp & Dohme (MSD), 28027 Madrid, Spain
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Fundación Vasca de Innovación Sanitaria, País Vasco, 48902 Bilbao, Spain
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Alicante-Sant Joan Health District, Comunidad Valenciana, 03550 Alicante, Spain
9
REDISSEC, Red de Investigación en Servicios de Salud en Enfermedades Crónicas, Comunidad Valenciana, 46020 Valencia, Spain
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2018, 15(9), 2040; https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph15092040
Received: 16 July 2018 / Revised: 31 August 2018 / Accepted: 15 September 2018 / Published: 18 September 2018
(This article belongs to the Special Issue Patient Satisfaction with Health Services)
Objective: Design and validate a measure of the experience of family caregivers with the integrated care that receive the persons they care for. Methods: The new instrument for measuring the experience of caregivers is based on the Instrument to Evaluate the EXperience of PAtients with Chronic Diseases (acronym in Spanish: IEXPAC) scale instrument. With the qualitative technique of the discussion group, nine professionals and eight caregivers assessed the face validity of the instrument and they advised on issues to explore and the measuring scale to use. The instrument’s items were analyzed individually, as well as its consistency, reliability, and construct and empirical validity. Results: 235 caregivers responded, of which 186 (79%) were women. The average age of the persons under their care was 83.9 years (SD 9.7). The scale’s score when eliminating its items one by one ranged between 38.6 and 41.1. The factorial saturations of the items ranged between 0.53 and 0.82. Cronbach’s alpha (12 elements) was 0.88 and the Kuder-Richardson coefficient was 0.91. The factorial solution explained 64.3% of the total variance and allowed isolating two factors (with 11 items with saturations greater than 0.65): care for the patient, and care for the caregiver. The internal consistency of both factors was greater than 0.80. The scale’s score was 41.1 (SD 9.7). Conclusions: The Caregivers Experience Instrument combines acceptability, ease of comprehension, and perceived usefulness for the caregivers. It has adequate internal consistency, reliability, and construct and empirical validity. View Full-Text
Keywords: caregivers; chronic disease; quality assurance; health services evaluation caregivers; chronic disease; quality assurance; health services evaluation
MDPI and ACS Style

Guilabert, M.; Amil, P.; González-Mestre, A.; Gil-Sánchez, E.; Vila, A.; Contel, J.C.; Ansotegui, J.C.; Solas, O.; Bacigalupe, M.T.; Fernández-Cano, P.; Arteagoitia, M.; Mira, J.J. The Measure of the Family Caregivers’ Experience. Int. J. Environ. Res. Public Health 2018, 15, 2040. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph15092040

AMA Style

Guilabert M, Amil P, González-Mestre A, Gil-Sánchez E, Vila A, Contel JC, Ansotegui JC, Solas O, Bacigalupe MT, Fernández-Cano P, Arteagoitia M, Mira JJ. The Measure of the Family Caregivers’ Experience. International Journal of Environmental Research and Public Health. 2018; 15(9):2040. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph15092040

Chicago/Turabian Style

Guilabert, Mercedes; Amil, Paloma; González-Mestre, Asunción; Gil-Sánchez, Esther; Vila, Anna; Contel, Joan C.; Ansotegui, Juan C.; Solas, Olga; Bacigalupe, Ma T.; Fernández-Cano, Paloma; Arteagoitia, Marisa; Mira, José J. 2018. "The Measure of the Family Caregivers’ Experience" Int. J. Environ. Res. Public Health 15, no. 9: 2040. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph15092040

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