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Understanding the Participation in Home, School, and Community Activities Reported by Children with Disabilities and Their Parents: A Pilot Study

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Graduate Institute of Early Intervention, College of Medicine, Chang Gung University, 259 Wen-Hwa 1st Road, Kwei-Shan, Tao-Yuan City 333, Taiwan
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The Department of Physical Medicine and Rehabilitation, Chang Gung Memorial Hospital, Linkou, 5 Fu-Xing St., Kwei-Shan, Tao-Yuan City 333, Taiwan
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The School and Graduate Institute of Physical Therapy, College of Medicine, National Taiwan University, 17 Xuzhou Rd., Taipei City 100, Taiwan
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CHILD, Swedish Institute of Disability Research, Jönköping University, Gjuterigatan 5, 553 18 Jönköping, Sweden
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2019, 16(12), 2217; https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph16122217
Received: 27 February 2019 / Revised: 1 May 2019 / Accepted: 19 June 2019 / Published: 24 June 2019
(This article belongs to the Section Children's Health)
Participation has significant impact on children’s health and well-being. Knowledge is limited on how children with disabilities perceive their participation and whether their perceptions differ from their parents. This pilot study aimed to explore whether self-reported frequency of participation and prioritized activities differ between children with disabilities and their parents. Thirty children with disabilities eligible for special education in elementary school and their parents were included. Each of them were interviewed with the Chinese version of Picture My Participation (PMP), separately, to identify the child’s participation frequency in 21 activities at home, school, and community, desire-to-change activities, and the level of involvement in these activities. The results indicated that children’s ratings of participation frequency were significantly lower than parents’ ratings in home activities but not in school and community activities, as analyzed by the Wilcoxon Signed Ranked test. Nineteen (63%) child–parent pairs had selected entirely different items as their desire-to-change activities. Children selected the activities that they were somewhat to very involved in; while parents selected the activities they thought their children were less involved in. Our findings suggest that children with disabilities had unique views on life and this should be supported in their health care and individualized education plans. View Full-Text
Keywords: participation; involvement; school age; children with disabilities; Picture My Participation participation; involvement; school age; children with disabilities; Picture My Participation
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MDPI and ACS Style

Liao, Y.-T.; Hwang, A.-W.; Liao, H.-F.; Granlund, M.; Kang, L.-J. Understanding the Participation in Home, School, and Community Activities Reported by Children with Disabilities and Their Parents: A Pilot Study. Int. J. Environ. Res. Public Health 2019, 16, 2217. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph16122217

AMA Style

Liao Y-T, Hwang A-W, Liao H-F, Granlund M, Kang L-J. Understanding the Participation in Home, School, and Community Activities Reported by Children with Disabilities and Their Parents: A Pilot Study. International Journal of Environmental Research and Public Health. 2019; 16(12):2217. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph16122217

Chicago/Turabian Style

Liao, Ya-Tzu, Ai-Wen Hwang, Hua-Fang Liao, Mats Granlund, and Lin-Ju Kang. 2019. "Understanding the Participation in Home, School, and Community Activities Reported by Children with Disabilities and Their Parents: A Pilot Study" International Journal of Environmental Research and Public Health 16, no. 12: 2217. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph16122217

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