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Article

Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study

1
Department of Hematology, Azienda USL–IRCCS di Reggio Emilia, Viale Risorgimento, 80-42123 Reggio Emilia, Italy
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Hospice “Casa Madonna dell’Uliveto” Via Oliveto, 34-42020 Albinea, Reggio Emilia, Italy
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Servizio Infermieristico Domiciliare, Azienda USL di Modena, piazzale dei Donatori di Sangue, 3-41012 Carpi, Italy
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Direzione delle Professioni Sanitarie Azienda USL-IRCCS di Reggio Emilia Viale Amendola, 2-42122 Reggio Emilia, Italy
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Department of Primary Care, Azienda USL-IRCCS di Reggio Emilia Viale Amendola, 2-42122 Reggio Emilia, Italy
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Qualitative Research Unit, Azienda USL-IRCCS di Reggio Emilia Viale Umberto I, 50-42123 Reggio Emilia, Italy
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2020, 17(11), 4036; https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph17114036
Received: 12 May 2020 / Revised: 31 May 2020 / Accepted: 2 June 2020 / Published: 5 June 2020
The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of primary caregivers of patients with hematological malignancies within home care. We conducted a phenomenological study based on interviews with 17 primary caregivers of hematological patients. Analysis of the contents led to the identification of five main themes. Perhaps, the innovative aspects of this study can be summarized in three points: This service was demonstrated to fulfil the ethical aspects of providing the patient with a dignified accompaniment to the end of life. Secondly, the efficiency of the service and the benefit are directly dependent on the caregivers’ wellbeing, so knowledge of the dynamics and emotions involved can lead to the development and implementation of programs for hematological malignancies. Lastly, a collaborative caregivers–professionals relationship can improve a sense of accomplishment for all parties involved, lessening the family’s frustration related to not having done their best. Home care brings significant benefits for both the patient and the caregivers and fulfils the ethical obligation of providing the patient dignified end-of-life care. View Full-Text
Keywords: caregivers; home care services; hematologic neoplasms; palliative care; qualitative research caregivers; home care services; hematologic neoplasms; palliative care; qualitative research
MDPI and ACS Style

Capodanno, I.; Rocchi, M.; Prandi, R.; Pedroni, C.; Tamagnini, E.; Alfieri, P.; Merli, F.; Ghirotto, L. Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study. Int. J. Environ. Res. Public Health 2020, 17, 4036. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph17114036

AMA Style

Capodanno I, Rocchi M, Prandi R, Pedroni C, Tamagnini E, Alfieri P, Merli F, Ghirotto L. Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study. International Journal of Environmental Research and Public Health. 2020; 17(11):4036. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph17114036

Chicago/Turabian Style

Capodanno, Isabella, Mirta Rocchi, Rossella Prandi, Cristina Pedroni, Enrica Tamagnini, Pierluigi Alfieri, Francesco Merli, and Luca Ghirotto. 2020. "Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study" International Journal of Environmental Research and Public Health 17, no. 11: 4036. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph17114036

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