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Home-Based Healthcare for Children with Illness

A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Children's Health".

Deadline for manuscript submissions: closed (31 October 2021) | Viewed by 8506

Special Issue Editors


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Guest Editor
Lund University, Lund, Sweden
Interests: pediatric; nursing; children; child centered care; family; health sciences

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Guest Editor
University of Iceland, Reykjavik, Iceland
Interests: nursing care of children and parents; pain and assessment in children; vital signs and measurements; health, and symptom assessments in children during illness and distress; parental needs and stress during child’s illness and disabilities

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Guest Editor
Copenhagen University Hospital Rigshospitalet, Denmark
Interests: pediatric nursing; home care; family; palliative care

Special Issue Information

Dear Colleagues,

International policy documents state that children should be admitted to the hospital only when care cannot be provided at home, and services for care at home for children with short- or long-term, acute or chronic illnesses have increased in recent decades. Home-based healthcare (HBH) provided by home care services for children can be described as care that “substitutes for acute hospital review and/or admission by providing clinical review, support, education and management of the acutely or chronically unwell child in their own home”. HBH further includes care performed by parents and/or other professionals in their home and instruments in interventions aiming at supporting and strengthening self-care, such as by the application of eHealth. However, models for organizing, providing, and financing HBH for children vary internationally and within countries, and the evidence base for how to organize and provide high-quality HBH in different models is limited. Each model brings its strengths and weaknesses, which limits the transferability of knowledge from one model to another, and it is vital to identify aspects of importance for high-quality HBH in different models and contexts. Families with sick children often prefer care at home to hospital care, and HBH is increasing worldwide with limited evidence on how to provide high-quality care in different settings. Papers addressing different aspects of HBH are invited for submission, especially those combining a high academic standard coupled with a practical focus on the family, family members, and other stakeholders’ experiences, interventions, and/or cost-effectiveness in order to deepen the knowledge and evidence base of HBH.

Prof. Inger Kristensson Hallström
Prof. Gudrun Kristjansdottir
Dr. Helena Hansson
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. International Journal of Environmental Research and Public Health is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2500 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • child
  • childhood illness
  • experiences
  • family
  • healthcare professionals
  • healthcare costs
  • home-based healthcare
  • parents
  • eHealth

Published Papers (3 papers)

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Research

11 pages, 295 KiB  
Article
A Descriptive Cross-Sectional Assessment of Caregivers’ Knowledge and Practices Regarding the Prevention and Management of Diarrhea among Children under the Age of Five in Thulamela B Clinics, South Africa
by Azwinndini Ndou, Rachel Tsakani Lebese, Takalani Grace Tshitangano and Jessica Uchechi Damian
Int. J. Environ. Res. Public Health 2021, 18(18), 9452; https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph18189452 - 08 Sep 2021
Viewed by 2394
Abstract
Diarrhea is a common cause of child-related hospitalization and mortality among children under the age of five in South Africa. This study was conducted to assess the knowledge and practices of caregivers regarding prevention and management of diarrhea among children under the age [...] Read more.
Diarrhea is a common cause of child-related hospitalization and mortality among children under the age of five in South Africa. This study was conducted to assess the knowledge and practices of caregivers regarding prevention and management of diarrhea among children under the age of five in the Thulamela Municipality of South Africa. A quantitative approach using a descriptive cross-sectional survey was used. A questionnaire was adopted to collect data from caregivers at thirty primary health-care facilities using convenient sampling. Statistical Package for Social Sciences (SPSS) version 24.0 was used to analyze data. Most of the respondents have fair knowledge about diarrhea, oral rehydration therapy/salt sugar solution and its usage during diarrheal episodes. However, most of them (81.7%) do not use the salt sugar solution when their children have diarrhea. Almost all the respondents practice a hand washing hygiene for themselves and their children; 97.2% do not reheat cooked food before feeding their children; 95.5% do not drink untreated water as their source of drinking water is the municipal supply. The practices of these respondents do not reflect their knowledge in terms of the use of oral rehydration solution/salt and sugar solution. Further efforts should be made to educate caregivers on the mode of transmission of diarrheal pathogens. Full article
(This article belongs to the Special Issue Home-Based Healthcare for Children with Illness)
13 pages, 339 KiB  
Article
“In a Way We Took the Hospital Home”—A Descriptive Mixed-Methods Study of Parents’ Usage and Experiences of eHealth for Self-Management after Hospital Discharge Due to Pediatric Surgery or Preterm Birth
by Rose-Marie Lindkvist, Annica Sjöström-Strand, Kajsa Landgren, Björn A. Johnsson, Pernilla Stenström and Inger Kristensson Hallström
Int. J. Environ. Res. Public Health 2021, 18(12), 6480; https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph18126480 - 15 Jun 2021
Cited by 9 | Viewed by 2722
Abstract
The costly and complex needs for children with long-term illness are challenging. Safe eHealth communication is warranted to facilitate health improvement and care services. This mixed-methods study aimed to describe parents’ usage and experiences of communicating with professionals during hospital-to-home-transition after their child’s [...] Read more.
The costly and complex needs for children with long-term illness are challenging. Safe eHealth communication is warranted to facilitate health improvement and care services. This mixed-methods study aimed to describe parents’ usage and experiences of communicating with professionals during hospital-to-home-transition after their child’s preterm birth or surgery for colorectal malformations, using an eHealth device, specifically designed for communication and support via nurses at the hospital. The eHealth devices included the possibility for daily reports, video calls, text messaging, and sending images. Interviews with 25 parents were analyzed with qualitative content analysis. Usage data from eHealth devices were compiled from database entries and analyzed statistically. Parents using the eHealth device expressed reduced worry and stress during the initial period at home through effective and safe communication. Benefits described included keeping track of their child’s progress and having easy access to support whenever needed. This was corroborated by usage data indicating that contact was made throughout the day, and more among families living far away from hospital. The eHealth device potentially replaced phone calls and prevented unnecessary visits. The eHealth technique can aid safe self-treatment within child- and family-centered care in neonatal and pediatric surgery treatment. Future research may consider organization perspectives and health economics. Full article
(This article belongs to the Special Issue Home-Based Healthcare for Children with Illness)
9 pages, 319 KiB  
Article
The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
by Malin de Flon, Gisela Glaffey, Linda Jarl, Kristin Sellbrant and Stefan Nilsson
Int. J. Environ. Res. Public Health 2021, 18(12), 6241; https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph18126241 - 09 Jun 2021
Cited by 5 | Viewed by 2494
Abstract
Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care [...] Read more.
Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account. Full article
(This article belongs to the Special Issue Home-Based Healthcare for Children with Illness)
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