Knowledge and Attitudes towards Palliative Care: Validation of the Spanish Version of Questionnaire on Palliative Care for Advanced Dementia
Abstract
:1. Introduction
- –
- adapt the qPAD scale in the Spanish language;
- –
- analyze its content and criterial validity;
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- analyze the level of difficulty of each item in a pilot study in healthcare professionals.
2. Materials and Methods
2.1. Elaboration of the qPAD Questionnaire in Spanish and Back Translation of the Spanish Version
2.2. Analysis of the Spanish Version of Questionnaire by the Group of Experts
2.3. Content, Criterial Validity and Difficulty Analysis of the Spanish Version of qPAD
3. Results
3.1. Review of Experts and Content Validity
3.2. Criterion Validity and Reliability
3.3. Results of the Pilot Study
4. Discussion
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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CVI | Kappa | % Right Answers | % Wrong Answers | % “Don’t Know” Asnwers | Difficulty (Mean) | |
---|---|---|---|---|---|---|
1. The best way to prevent weight loss for persons with advanced dementia is to keep them on their special medical diets (e.g., low fat, cardiac, renal). | 0.92 | 0.92 | 50.97 | 35.92 | 13.11 | 0.51 |
2. It is possible to prevent pressure ulcers in persons with advanced dementia. | 0.92 | 0.92 | 95.14 | 2.43 | 2.43 | 0.95 |
3. It is possible to prevent weight loss in most persons with advanced dementia. | 1 | 1 | 52.43 | 29.13 | 18.44 | 0.52 |
4. Since persons with advanced dementia are so impaired, it is not likely that they are depressed. | 1 | 1 | 93.20 | 3.40 | 3.40 | 0.93 |
5. One benefit of advanced dementia is that people no longer have pain. | 1 | 1 | 96.12 | 0.97 | 2.91 | 0.96 |
6. When a person is resistive to “hands-on” care, it is best to stop what you are doing and come back later to try to complete the task. | 1 | 1 | 85.44 | 5.82 | 8.74 | 0.85 |
7. Persons with advanced dementia should take showers just as other persons do. | 1 | 1 | 66.99 | 21.84 | 11.16 | 0.67 |
8. Persons with advanced dementia cannot verbally tell us when they are hungry or thirsty. | 1 | 1 | 65.53 | 24.76 | 9.71 | 0.65 |
9. Persons with advanced dementia can reposition themselves easily in their chairs. | 1 | 1 | 90.78 | 3.88 | 5.34 | 0.91 |
10. Although persons with advanced dementia are incontinent, it is still possible to toilet them. | 0.92 | 0.92 | 75.73 | 12.62 | 11.65 | 0.77 |
11. The sounds of music, meal service and conversations during dining do not generally pose problems for people with advanced dementia. | 0.92 | 0.92 | 84.47 | 8.74 | 6.79 | 0.84 |
12. Persons with advanced dementia typically die from some sort of infection, such as pneumonia or a urinary tract infection. | 0.92 | 0.92 | 83.01 | 6.80 | 10.19 | 0.83 |
13. Physical restraints decrease the chance that a person with advanced dementia will fall. | 1 | 1 | 44.17 | 40.78 | 15.05 | 0.44 |
14. When people “call out” over and over again, it is best to not worry about this behavior because this is a common occurrence for persons with advanced dementia. | 1 | 1 | 92.23 | 2.43 | 5.34 | 0.92 |
15. Persons with advanced dementia will never experience boredom. | 0.85 | 0.84 | 93.20 | 0.97 | 5.83 | 0.93 |
16. If persons with advanced dementia resist (e.g., hit, bite, kick etc.) a brief change, it may be due to invasion of privacy. | 0.92 | 0.92 | 88.35 | 2.91 | 8.74 | 0.88 |
17. Persons with advanced dementia should get pain medications around-the-clock, when needed. | 0.85 | 0.84 | 36.41 | 49.03 | 14.56 | 0.36 |
18. “Anticipation of need” refers to addressing the needs of persons with advanced dementia through a daily schedule established by the facility where they live. | 0.85 | 0.84 | 43.20 | 50.48 | 6.31 | 0.43 |
19. If a person with advanced dementia is unable to sleep at night, a sleeping medication should be considered first. | 0.92 | 0.92 | 78.64 | 11.17 | 10.19 | 0.79 |
20. When persons with advanced dementia spit out their food, it is because they are not hungry. | 1 | 1 | 90.29 | 1.46 | 8.25 | 0.90 |
21. Persons with advanced dementia really can’t convey or relate to caregivers if they are hungry, have pain, or need to use the bathroom. | 0.92 | 0.92 | 30.10 | 59.22 | 10.68 | 0.30 |
22. Persons with advanced dementia can fatigue or tire easily, and as a result, they usually need to lie down frequently. | 0.92 | 0.92 | 38.35 | 36.41 | 25.24 | 0.38 |
23. When persons with advanced dementia rapidly become more confused or display changes in behavior, it is likely that their dementia is getting worse. | 0.92 | 0.92 | 54.37 | 31.07 | 14.56 | 0.54 |
CVI | Kappa | Mean | |
---|---|---|---|
1. I believe my work experience enables me to discuss advanced dementia care with families. | 0.92 | 0.92 | 3.5 |
2. I believe my education enables me to discuss advanced dementia care with families. | 1 | 1 | 3.48 |
3. I believe it is important that caregivers provide families with information about end-of-life decisions. | 1 | 1 | 4.77 |
4. Families are given consistent information about the consequences of their end-of-life care decisions. | 0.92 | 0.92 | 3.38 |
5. Families are regularly included in ongoing discussions regarding advanced dementia care needs for their loved ones. | 1 | 1 | 3.63 |
6. I frequently talk with my teammates about how we can change and improve the care for persons with advanced dementia. | 1 | 1 | 3.54 |
7. I am regularly included in the care-planning for persons with advanced dementia. | 1 | 1 | 3.26 |
8. My supervisor and team regularly listen to me regarding suggestions for persons with advanced dementia. | 1 | 1 | 3.32 |
9. On most days, I am satisfied with my job of caring for persons with advanced dementia. | 1 | 1 | 3.36 |
10. My input and opinion are valued regarding the needs of persons with advanced dementia. | 1 | 1 | 3.45 |
11. On most days, I feel I’m part of the care team. | 1 | 1 | 3.79 |
12. I enjoy providing care for persons who have advanced dementia. | 1 | 1 | 3.87 |
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Chover-Sierra, E.; Pérez-Ros, P.; Julián-Rochina, I.; Long, C.O.; Cauli, O. Knowledge and Attitudes towards Palliative Care: Validation of the Spanish Version of Questionnaire on Palliative Care for Advanced Dementia. Healthcare 2022, 10, 656. https://0-doi-org.brum.beds.ac.uk/10.3390/healthcare10040656
Chover-Sierra E, Pérez-Ros P, Julián-Rochina I, Long CO, Cauli O. Knowledge and Attitudes towards Palliative Care: Validation of the Spanish Version of Questionnaire on Palliative Care for Advanced Dementia. Healthcare. 2022; 10(4):656. https://0-doi-org.brum.beds.ac.uk/10.3390/healthcare10040656
Chicago/Turabian StyleChover-Sierra, Elena, Pilar Pérez-Ros, Iván Julián-Rochina, Carol O. Long, and Omar Cauli. 2022. "Knowledge and Attitudes towards Palliative Care: Validation of the Spanish Version of Questionnaire on Palliative Care for Advanced Dementia" Healthcare 10, no. 4: 656. https://0-doi-org.brum.beds.ac.uk/10.3390/healthcare10040656