Parental Engagement of a Prototype Electronic Diary in an Ambulatory Setting Following Adenotonsillectomy in Children: A Prospective Cohort Study
Abstract
:1. Introduction
2. Materials and Methods
2.1. Study Design and Setting
2.2. Participants
2.3. Data Collection
2.4. Data Sources and Measures
2.4.1. Pain
2.4.2. Parental Engagement (Response Rate and Compliance)
2.4.3. Satisfaction Ratings
2.5. Data Analysis and Statistical Analysis
3. Results
3.1. Demographic and Clinical Characteristics
- “I do not have time to sit at computer”
- “I will not be able to look back at the progression”
- “I will not have time (I am home alone)”
- “It would be easier to send the photos (picture message)”
- “Had the e-diary been available on a cell phone APP, I would have done electronic.”
3.2. Parental Engagement of the Prototype E-Diary
3.2.1. Diary Response Rate
3.2.2. Compliance with Diary Usage
3.3. Parental Satisfaction with the Prototype E-Diary
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Appendix A
- Very satisfied
- Satisfied
- Neither satisfied nor dissatisfied
- Dissatisfied
- Very dissatisfied
- Very satisfied
- Satisfied
- Neither satisfied nor dissatisfied
- Dissatisfied
- Very dissatisfied
- In total agreement
- Agree
- Neither agree nor disagree
- Disagree
- In total disagreement
- In total agreement
- Agree
- Neither agree nor disagree
- Disagree
- In total disagreement
- Very satisfied
- Satisfied
- Neither satisfied nor dissatisfied
- Dissatisfied
- Very dissatisfied
- Yes
- No
- Don’t know
- In total agreement
- Agree
- Neither agree nor disagree
- Disagree
- In total disagreement
- In total agreement
- Agree
- Neither agree nor disagree
- Disagree
- In total disagreement
- In total agreement
- Agree
- Neither agree nor disagree
- Disagree
- In total disagreement
- In total agreement
- Agree
- Neither agree nor disagree
- Disagree
- Inn total disagreement
References
- Stewart, D.W.; Ragg, P.G.; Sheppard, S.; Chalkiadis, G.A. The severity and duration of postoperative pain and analgesia requirements in children after tonsillectomy, orchidopexy, or inguinal hernia repair. Pediatr. Anesthesia 2011, 22, 136–143. [Google Scholar] [CrossRef]
- Fortier, M.A.; MacLaren, J.E.; Martin, S.R.; Perret-Karimi, D.; Kain, Z.N. Pediatric pain after ambulatory surgery: Where’s the medication? Pediatrics 2009, 124, e588–e595. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Lauder, G.; Emmott, A. Confronting the challenges of effective pain management in children following tonsillectomy. Int. J. Pediatr. Otorhinolaryngol. 2014, 78, 1813–1827. [Google Scholar] [CrossRef] [PubMed]
- Chen, Y.; Chin, M.; Greenberg, S.; Johnstone, C.; McGuinness, J. Post-tonsillectomy pain in 24 children—utilising short message service (SMS) to assess postoperative outcomes. Clin. Otolaryngol. 2012, 37, 412–414. [Google Scholar] [CrossRef] [PubMed]
- Gill, L.J.; Shand, P.A.X.; Fuggle, P.; Dugan, B.; Davies, S.C. Pain assessment for children with sickle cell disease: Improved validity of diary keeping versus interview ratings. Br. J. Health Psychol. 1997, 2, 131–140. [Google Scholar] [CrossRef]
- Stone, A.; Shiffman, S.; Schwartz, J.; Broderick, J.; Hufford, M.R. Patient compliance with paper and electronic diaries. Control. Clin. Trials 2003, 24, 182–199. [Google Scholar] [CrossRef]
- Palermo, T.M.; Valenzuela, D.; Stork, P.P. A randomized trial of electronic versus paper pain diaries in children: Impact on compliance, accuracy, and acceptability. Pain 2004, 107, 213–219. [Google Scholar] [CrossRef] [PubMed]
- Kanbar, L.J.; Shalish, W.; Precup, D.; Brown, K.; Sant’Anna, G.M.; Kearney, R. Automated ongoing data validation and quality control of multi-institutional studies. In Proceedings of the 2016 38th Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC), Orlando, FL, USA, 16–20 August 2016; pp. 2504–2507. [Google Scholar]
- Chambers, C.; Reid, G.J.; McGrath, P.; Finley, A.G. Development and preliminary validation of a postoperative pain measure for parents. Pain 1996, 68, 307–313. [Google Scholar] [CrossRef]
- Manworren, R.C.B.; Hynan, L.S. Clinical validation of FLACC: Preverbal patient pain scale. Pediatr. Nurs. 2003, 29, 140–146. [Google Scholar] [PubMed]
- Hicks, C.L.; von Baeyer, C.L.; Spafford, P.A.; van Korlaar, I.; Goodenough, B. The Faces Pain Scale—Revised: Toward a common metric in pediatric pain measurement. Pain 2001, 93, 173–183. [Google Scholar] [CrossRef]
- Knuf, K.M.; Maani, C.; Cummings, A.K. Clinical agreement in the American Society of Anesthesiologists physical status classification. Perioper. Med. 2018, 7, 1–6. [Google Scholar] [CrossRef] [Green Version]
- Simpao, A.F.; Lingappan, A.M.; Ahumada, L.M.; Rehman, M.A.; Gálvez, J.A. Perioperative Smartphone Apps and Devices for Patient-Centered Care. J. Med. Syst. 2015, 39, 1–5. [Google Scholar] [CrossRef] [PubMed]
- Hufford, M.R.; Shiffman, S. Methodological issues affecting the value of patient-reported outcomes data. Expert Rev. Pharmacoecon. Outcomes Res. 2002, 2, 119–128. [Google Scholar] [CrossRef] [PubMed]
- Levin, M.; Seligman, N.L.; Hardy, H.; Mohajeri, S.; Maclean, J.A. Pediatric pre-tonsillectomy education programs: A systematic review. Int. J. Pediatr. Otorhinolaryngol. 2019, 122, 6–11. [Google Scholar] [CrossRef]
- Jain, C.; Levin, M.; Hardy, H.; Farrokhyar, F.; Reid, D. The association between pre-tonsillectomy education and postoperative emergency department returns: A retrospective cohort pilot study. Int. J. Pediatr. Otorhinolaryngol. 2020, 138, 110314. [Google Scholar] [CrossRef] [PubMed]
- Adams, M.T.; Chen, B.; Makowski, R.; Bevans, S.; Boseley, M. Multimedia Approach to Preoperative Adenotonsillectomy Counseling. Otolaryngol. Neck Surg. 2011, 146, 461–466. [Google Scholar] [CrossRef] [PubMed]
- O’Conner-Von, S. Preparation of Adolescents for Outpatient Surgery: Using an Internet Program. AORN J. 2008, 87, 374–398. [Google Scholar] [CrossRef] [PubMed]
- Yang, J.Y.; Lee, H.; Zhang, Y.; Lee, J.U.; Park, J.H.; Yun, E.K. The Effects of Tonsillectomy Education Using Smartphone Text Message for Mothers and Children Undergoing Tonsillectomy: A Randomized Controlled Trial. Telemed. e-Health 2016, 22, 921–928. [Google Scholar] [CrossRef] [PubMed]
- Farias, N.; Rose-Davis, B.; Hong, P.; Wozney, L. An Automated Text Messaging System (Tonsil-Text-To-Me) to Improve Tonsillectomy Perioperative Experience: Exploratory Qualitative Usability and Feasibility Study. JMIR Perioper. Med. 2020, 3, e14601. [Google Scholar] [CrossRef] [PubMed]
Paper Diary (n = 173) | Electronic Diary (n = 35) | p-Value | |
---|---|---|---|
Median [IQR] | Median [IQR] | ||
Age (years) | 4.3 [3.0–6.0] | 3.9 [3.2–4.9] | 0.296 |
Weight (kg) | 17.6 [14.9–24.1] | 16.9 [14.7–22.2] | 0.293 |
n (%) | n (%) | ||
Gender = Female | 75 (43.3) | 17 (48.6) | 0.135 |
ASA | |||
1 | 91 (52.6) | 16 (45.7) | 0.612 |
2 | 78 (45.1) | 18 (51.4) | |
3 | 4 (2.3) | 1 (2.9) | |
4 | 0 (0.0) | 0 (0.0) | |
Surgical Indications | |||
OSA | 55 (31.8) | 14 (40.0) | 0.936 |
TAH | 90 (52.0) | 16 (45.7) | |
Recurrent Tonsillitis | 15 (8.7) | 1 (2.9) | |
Undetermined | 13 (7.5) | 4 (11.4) |
Paper Diary (n = 173) | Electronic Diary (n = 35) | p-Value | |
---|---|---|---|
n (%) | n (%) | ||
Teaching given to: | |||
Mother | 113 (65.7) | 23 (67.6) | 0.150 |
Father | 9 (5.2) | 3 (8.8) | |
Both | 50 (29.1) | 7 (20.6) | |
Other | 0 (0.0) | 1 (2.9) | |
Diaries with pain entries (excludes entries with no data) | (n = 134) | (n = 28) | |
Gaps for PPPM | 8 (6.0) | 1 (3.6) | 1.000 |
Gaps for 2nd Pain Scale | 5 (3.7) | 0 (0.0) | 0.589 |
Missing PPPM items | 14 (10.4) | 1 (3.6) | 0.472 |
Median [IQR] | Median [IQR] | ||
Last POD entry for: | |||
Medication | 13 [7.00–14.00] | 13 [3.75–14.00] | 0.554 |
PPPM score | 12 [8.00–14.00] | 13 [4.75–14.00] | 0.654 |
2nd Pain Scale score | 13 [8.25–14.00] | 13 [4.75–14.00] | 0.526 |
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Mchugh, T.; Brown, K.A.; Daniel, S.J.; Balram, S.; Frigon, C. Parental Engagement of a Prototype Electronic Diary in an Ambulatory Setting Following Adenotonsillectomy in Children: A Prospective Cohort Study. Children 2021, 8, 559. https://0-doi-org.brum.beds.ac.uk/10.3390/children8070559
Mchugh T, Brown KA, Daniel SJ, Balram S, Frigon C. Parental Engagement of a Prototype Electronic Diary in an Ambulatory Setting Following Adenotonsillectomy in Children: A Prospective Cohort Study. Children. 2021; 8(7):559. https://0-doi-org.brum.beds.ac.uk/10.3390/children8070559
Chicago/Turabian StyleMchugh, Tobial, Karen A. Brown, Sam J. Daniel, Sharmila Balram, and Chantal Frigon. 2021. "Parental Engagement of a Prototype Electronic Diary in an Ambulatory Setting Following Adenotonsillectomy in Children: A Prospective Cohort Study" Children 8, no. 7: 559. https://0-doi-org.brum.beds.ac.uk/10.3390/children8070559