Patient-Reported Measures
A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Healthcare Quality and Patient Safety".
Deadline for manuscript submissions: 30 June 2024 | Viewed by 8845
Special Issue Editor
2. School of Medicine, Western Sydney University, Campbelltown, NSW 2560, Australia
3. Department of General Practice, University of Melbourne, Melbourne, VIC 3010, Australia
Interests: health service delivery; primary health care; Indigenous health; integrated oral health care; quality care; cultural sensitivity; diabetes; chronic disease
Special Issues, Collections and Topics in MDPI journals
Special Issue Information
Dear Colleagues,
Patient-reported measures (PRMs) of outcomes and experience are an important aspect of providing high-quality primary health care (PHC). PRMs provide insight to healthcare professionals, practices and primary health networks about patient experiences, needs and expectations and areas of importance to patients, in addition to highlighting areas of achievement and gaps.
This Special Issue of Healthcare seeks commentaries, original research, short reports, and reviews on the development, function, validation and evaluation of PRMs in the context of healthcare. The aim is to inform health policies, strategies and systems to empower the voice of patients.
Dr. Phyllis Lau
Guest Editor
Manuscript Submission Information
Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.
Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.
Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.
Keywords
- patient-reported measures
- Patient-Reported Experience Measures (PREMs)
- Patient-Reported Outcome Measures (PROMs)
- consumer self-reporting tools/instruments
- patient satisfaction
- patient perception
Planned Papers
The below list represents only planned manuscripts. Some of these manuscripts have not been received by the Editorial Office yet. Papers submitted to MDPI journals are subject to peer-review.
Title: Self-monitoring Practices and Use of Self-monitoring Technologies by People with Rheumatic and Musculoskeletal Diseases: An International Survey Study
Authors: Pedro Matias1, MSc, Sílvia Rêgo1, MSc, Francisco Nunes1, PhD, Ricardo Araújo1, MSc, Nadja Kartschmit2, PhD, Tanita-Christina Wilhelmer3, MA, Tanja Stamm2, PhD MSc MBA, Paul Studenic4,5, MD PhD.
Affiliation: 1 Fraunhofer Portugal AICOS, Rua Alfredo Allen 455/461, Porto, 4200-135, Portugal
2 Center for Medical Data Science, Institute of Outcomes Research, Medical University of Vienna, Vienna, Austria
3 Patient research Partner, Österreichische Rheumaliga, Austria
4 Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna, Vienna
5 Division of Rheumatology, Department of Medicine (Solna), Karolinska Institutet, Stockholm, Sweden
Abstract: Digital Health Applications (DHAs) promise to improve disease self-management, but patient adherence remains suboptimal.We aimed to explore self-monitoring practices of RMD patients,the potential of implementing DHAs into care processes. A web-survey was conducted over 7 months includingRMD patients to study their self-monitoring practices and the potential of DHAs. Health, sociodemographic, and technology adherence indicators were retrieved for comparison. Regression analyses and unsupervised profiling were performed to investigate the behaviour of multiple patient profiles. From 228 responses gathered, most reported willingness to use DHAs to monitor their condition (78% agreement), although the majority rarely/never tracks symptoms (64%), often due to stable condition or no perceived value (62%). Of those tracking regularly, 52% use non-digital means. Participants with regular self-monitoring practices were more open to use a self-monitoring app (OR=0.8[0.6,0.9]; p=0.008) and embedded in multidisciplinary care (OR=1.4[1.1,1.6]; p<0.001), but showed worse health status (g=0.4; p=0.006). Unsupervised cluster analyses revealed three distinct groups of reasons for not tracking regularly (χ²=174.4; p<0.001), two characterised by perceived low disease activity. Effective use of DHAs remains limited and non-digital means prevail in symptom monitoring. Findings suggest that better patient engagement strategies and passive monitoring should be adopted in early development stages of DHAs, for better long-term disease self-care.
Keywords: rheumatology, patient reported outcome measures, self-monitoring, health-related quality of life, quality of care