Next Article in Journal
Perceived Risk of COVID-19 and Employee Decision-Making: How Psychological Distress during the Pandemic Increases Negative Performance Outcomes among Healthcare Workers
Previous Article in Journal
Social Inequalities in the Association between Social Infrastructure and Mental Health: An Observational Cross-Sectional Analysis of Children and Adolescents in Germany
 
 
Font Type:
Arial Georgia Verdana
Font Size:
Aa Aa Aa
Line Spacing:
Column Width:
Background:
Article

Perceptions of Older People with Cognitive Impairment, Caregivers, and Professionals about ehcoBUTLER (Tablet Health Care Platform): A Qualitative Focus Group Study

by
Leslie María Contreras-Somoza
1,2,*,
José Miguel Toribio-Guzmán
2,
María Cruz Sánchez-Gómez
3,
Eider Irazoki
1,2,
María Victoria Martín-Cilleros
3,
Sonia Verdugo-Castro
3,
Esther Parra-Vidales
2,
María Victoria Perea-Bartolomé
1 and
Manuel Ángel Franco-Martín
1,4,5
1
Faculty of Psychology, Campus Ciudad Jardín, University of Salamanca, Avenida de la Merced, 109, 37005 Salamanca, Spain
2
Department of Research and Development, Iberian Institute of Research in Psycho-Sciences, INTRAS Foundation, Carretera de la Hiniesta 137, 49024 Zamora, Spain
3
Department of Didactic, Organization and Research Methods, University of Salamanca, Paseo de Canalejas, 169, 37008 Salamanca, Spain
4
Department of Psychiatry and Mental Health, Río Hortega University Hospital, Calle Dulzaina, 2, 47012 Valladolid, Spain
5
Department of Psychiatry, Zamora Provincial Hospital, Calle Hernán Cortés, 40, 49071 Zamora, Spain
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2022, 19(11), 6761; https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph19116761
Submission received: 12 April 2022 / Revised: 27 May 2022 / Accepted: 31 May 2022 / Published: 1 June 2022
(This article belongs to the Section Aging)

Abstract

:
EhcoBUTLER is a tablet platform mainly aimed at the elderly with mild cognitive impairment (MCI) to promote their well-being and health. The main objective of this study was to explore the perceptions and feedback level of the ehcoBUTLER potential users and stakeholders to improve its development. Through this exploration, the secondary objective was to contribute to the development of software/apps that promote their integral health. Focus groups were conducted (13 elderly with MCI, 13 with dementia, 12 caregivers, 11 professionals). The content and feedback level were analyzed. Participants liked the appearance of ehcoBUTLER, would like to use it, and were mainly interested in the emotional, healthy lifestyle, cognitive, and ergonomic tools. It is necessary to have prior training, more intuitive/customizable apps, low-price/free, offline/USB content, and add other activities/features. EhcoBUTLER is well-oriented to meet the needs and preferences of potential users. However, improvements in its usability, accessibility, and sustainability are needed. The participants’ perspectives provided a comprehensive view to improve ehcoBUTLER, so that in the future, it can benefit the elderly to be active agents in their health; support caregivers in their role and to have a respite; and professionals to have a multi-intervention platform. The present findings can contribute to the development of tablet software/apps that promote the integral well-being of this population.

1. Introduction

1.1. Background

Older adults often suffer from social isolation, loneliness [1], and cognitive and physical decline [2], which impacts their emotional state [3]. These difficulties may be worsened if cognitive decline progresses to mild cognitive impairment (MCI) and then to dementia [4]. The increase in the life expectancy of the older population represents a challenge to improve their quality of life, while reducing the costs of providing them with care and health services [5]. In this way, technological innovation can be a help and support to promote their well-being and solve this challenge [5].
New technologies have generated a revolution in health and social care [6]. Technologies have facilitated data entry, processing, and storage [7] and have also enabled the automation of activities and processes, leading to greater efficiency and cost reductions [8]. In addition, they have improved flexibility and access to services for people who are homebound, or who have limited transportation [9]. Furthermore, technologies have improved the quality of health care by enabling greater communication between the professionals and patients and dynamic services that increase the patients’ involvement in their health [8].
However, the use of new technologies by the elderly also involves challenges, especially if they have cognitive impairment [10]. They face barriers related to the decline in their functions and lack of computer skills because they were born before the technological revolution [11,12]. In addition, they often face problems related to inadequate design, in which their characteristics and needs are not taken into account, so they feel discouraged in using them [10,13].
Therefore, technologies that are appropriately adapted to an elderly population with cognitive impairment and that promote their well-being stand out. For example, CIRCA (Computer Interactive Reminiscence and Conversation Aid) is an application (app) for people with dementia (PWD) to interact with photos, video, and music on a touch screen, thus promoting their communication with their caregivers [14] and also improving their quality of life [15]. Another example of technology supporting the care of individuals with MCI or dementia is a virtual reality program with real and familiar environments, which has been shown to improve their mental well-being [16].
Regarding the cognitive area, there are various cognitive intervention software for elderly people with MCI or PWD; such a variety allows for the professionals and end users to select the one that best suits their objectives and cognitive needs [17]. In addition, there are games for individuals with MCI or dementia to train cognitive functions such as Kitchen and Cooking, which was considered as interesting and motivating [18]. Furthermore, games can be used for leisure, fun, and recreational purposes [19].
On the other hand, the ReaCT (Rehabilitation in Alzheimer’s disease through Cognitive Support Technology) app supports the self-management of PWD through a calendar as the main tool. Functions can be adjusted to suit the needs and preferences of each person, and caregivers also have access to it [20]. Another example is the Digital Memory Notebook (DMN), which is a tablet app to support the independence for individuals with MCI. Most participants perceived that the DMN improved their satisfaction with life and daily activities [21].
It has been shown that older adults with MCI and people with early dementia are interested in using technologies that promote their cognitive functions, lifestyle, and overall health [22]. Therefore, a technology that has the tools to address the various aspects above-mentioned could represent several benefits to this population in a single system.

1.2. EhcoBUTLER

EhcoBUTLER is an Information and Communication Technology that has different modules: healthy lifestyle, leisure and free time, emotional, social, and cognitive care. EhcoBUTLER is funded by the European Union (H2020; ID: 643566) and is under development. Its aims to promote the health, well-being, and independence of older people, especially those with MCI at the social level [23]. EhcoBUTLER also has an ergonomic design inherited from BUTLER, which has demonstrated an adequate level of usability in the older population [12]. As part of its ergonomic design, and to promote its portability, the system was especially adapted for use on a tablet. In addition, touch screen tablets are a relatively inexpensive for people with cognitive impairment to engage in meaningful activities [24].
Another important element of ehcoBUTLER is its linear navigation system, which allows users to use the system step-by-step [25]. Users select the apps they wish to use from the main menu, and a human-looking avatar explains in audio and text what they can do next. In addition, the buttons have different colors according to their actions: green is for continuing a task; red is for deleting data or undoing a step; and orange implies secondary actions [10].
Family members and informal caregivers of the elderly can access ehcoBUTLER to interact with them and find out what they are doing. In addition, the professionals manage and customize the different modules of the platform and can also use it to communicate with other professionals and relatives of the elderly person.

1.3. Human Centered-Design

Most systems aimed at the elderly population consist of a single app to reduce their mental load; this does not mean that a system with several apps is impossible, but that it requires additional efforts in its design and evaluation [12]. Indeed, elderly people believe that despite the potential benefits of technology, if adequate measures are not taken to help them to use it, the digital divide will expand [26]. It is not only necessary to develop tools that are easy to use, but also to provide a pleasant user experience [27], and a human-centered design would allow for the development of products and services with such features [28].
One of the most widely used tools in human-centered design are focus groups [29], because they allow for a better understanding of the needs and particularities of the users, according to their opinions and attitudes [30,31]. Some studies have conducted focus groups of PWD to develop technologies. For example, key aspects in the design of a virtual environment were identified through the opinions and thoughts gathered from focus groups such as easy access, realistic and age-appropriate content, and tasks with specific objectives [32]. In other research, focus groups of PWD provided insights into the challenges they faced in terms of emotional stability and their requirements to develop a sensor platform to monitor their emotional state at home [33].
More studies are needed that include older people and investigate how they feel about new technologies, their reasons for using them, their frequency, and form of use [34]. In addition, in the development of technological products and services, the perspectives of the elderly and stakeholders are essential to break down barriers and benefit everyone [35]. The participation of PWD is also a challenge [33], because their communication skills are typically one of the most affected [36]. Their difficulties increase as their disease progresses, so it is important to focus on mild dementia to generate interventions from an early stage [37] as well as from the MCI because of their risk of conversion to dementia [38].

1.4. Objective of This Study

The main objective of this study was to explore the perceptions and feedback level of the ehcoBUTLER potential primary users (older adults with MCI and people with mild dementia) and stakeholders (informal caregivers and health professionals) to improve the development of this platform according to their needs, preferences, and suggestions. Through this exploration, the secondary objective was to contribute to the development of tablet platforms and apps aimed at promoting the integral well-being and health of this population.

2. Method

2.1. Design

This is a qualitative study with a phenomenological approach, in which focus groups were conducted. This approach and technique are useful for gathering and understanding a wide range of perceptions, ideas, and opinions by providing an interactive environment where members share and compare their views, encouraging even reserved individuals to participate [39].

2.2. Participants

A total of 49 people participated in the study. Eight focus groups were conducted: two for older adults with MCI, two for PWD, two for caregivers, and two for professionals. Each group consisted of five to eight members to promote their participation [40]. Table 1 details their sociodemographic characteristics.
Potential participants with MCI, dementia, and their caregivers were contacted by telephone, while the professionals were invited by email. They were asked whether they wanted to participate after explaining the aim of the study, the confidentiality of the data, and the estimated duration of the focus groups. In addition, in case any need arose, the caregivers of PWD gave their consent for their relatives to participate.

2.2.1. MCI Groups

They lived in the community and were recruited from the Memory Workshops of INTRAS Foundation (Zamora, Spain). The inclusion criteria were: 55 years or older, have a diagnosis of MCI (meeting the criteria of Petersen [41]) without any associated psychiatric disorder, be able to read and write, and not have vision/hearing difficulties. In addition, the participants had previous experience with a computer-based cognitive stimulation, training, and rehabilitation program called GRADIOR [42,43] from attending those workshops. Thirteen elderly adults with MCI participated. Most of them were widowed (53.85%) women (84.62%) with a primary education (53.85%) and had an average age of 75.31 (SD = 8.05).

2.2.2. Dementia Groups

Participants were recruited from the Memory Workshops and the Memory Clinic of the INTRAS Foundation (Zamora, Spain). They lived in the community and their inclusion criteria were to be 55 years or older, be able to write and read, have no hearing/vision problems, and have a diagnosis of mild dementia without any related psychiatric disorder. Their diagnosis was based on meeting the Diagnostic and Statistical Manual for Mental Disorders (DSM-5) criteria for major neurocognitive disorder, the current term for which was previously called dementia [44].
Participants also had previous experience with GRADIOR from attending workshops or the clinic. A middle-aged adult with early onset of dementia was included as an exception. Thirteen people participated with a mean age of 76.46 (SD = 10.53). Most were widowed (46.15%) women (69.23%) and had a primary education (53.85%).

2.2.3. Caregiver Groups

The inclusion criteria for this group were to be informal caregivers who provided instrumental and accompaniment aids to older adults, and to have previous experience with technological devices. Their recruitment also came from the Memory Clinic of INTRAS Foundation (Zamora, Spain). Twelve caregivers participated, most of whom were married (66.67%) women (66.67%), had an associate degree (41.67%), and an average age of age 54.17 (SD = 14.11).

2.2.4. Professional Groups

This group had the inclusion criteria of: being a health professional (psychologists, neuropsychologists, therapists, etc.) with experience attending older adults with cognitive impairment and had worked or presently worked with technological tools as part of their clinical intervention. Their recruitment came from different departments of the INTRAS Foundation. Eleven professionals participated with a mean age of 33.09 (SD = 7.91) and most were women (72.73%).

2.3. Procedure

The Provincial Hospital of Zamora gave its ethical approval to carry out this study (Protocol Code: 387-E.C.). The focus groups were conducted at the INTRAS Foundation’s Memory Clinic (Zamora, Spain) and there were two members of the research team during them: one was the moderator, while the other took manual notes.
The moderator began by explaining the objective of the study, the audio and video recording of the meeting, the data confidentiality, and asked the participants whether they agreed to participate. All of them signed the informed consent form and filled out a sociodemographic data form. The same accessible room was used for all groups. To avoid interruptions and distractions, a signboard indicated that the meeting was being recorded.
The moderator then showed a video demonstration of ehcoBUTLER, explained its purpose and functions, and asked the semi-structured questions from the scripts. There were three scripts: one for older adults with cognitive impairment, one for caregivers, and another one for professionals.
The script of the elderly and that of their caregivers inquired about their use and preference of technologies and social networks, their general perception of ehcoBUTLER and its main tools, aspects to improve it, how often they would use it, and whether they would be willing to pay for it. The professionals’ script differed in asking them about psychosocial stimulation programs, rather than about technologies and social networks.
The moderator redirected the topic when necessary and encouraged all participants to provide their opinion. The focus groups lasted approximately one hour each and, at the end, participants were given a small present to thank them for their collaboration. The verbal content of the discussions was transcribed anonymously for further analysis. All of the material was carefully stored in a security filing cabinet, where only the team’s researchers had access.

2.4. Data Analysis

First, the sociodemographic data of the participants were analyzed; the SPSS statistical program (version 25) was used to obtain their percentages, means, and standard deviations. Second, the NVivo 12 Plus program was used for the analysis of the focus group data because it makes coding and node management more efficient. Based on the scripts and themes discussed in the focus groups, homogeneous categories and subcategories were created for all groups, in order to have the same coding system and compare the content of the groups in relation to the categories and subcategories. The general categories were: (1) Previous experience with technology, social networks, or psychosocial programs; (2) General perception of ehcoBUTLER; and (3) Perceptions of ehcoBUTLER modules (Figure 1). In addition, due to the extent of the subcategories of the ehcoBUTLER modules, these are detailed in Figure 2.
Third, double entry matrices were created, where the content was crossed between each participant and each of the categories and subcategories to compare the positive or negative perceptions of the groups.
Fourth, the level of feedback was examined. Considering the degree of clarity, completeness, and elaboration of their answers, a value was assigned for each participant’s response: 1 point for lack/low feedback, 2 points for medium feedback, and 3 points for high feedback. Then, to determine the feedback level of each group, three ranges of scores were established. The minimum and maximum of these scores varied according to the number of members in each group (Table 2). For example, as there were 13 participants in the MCI group, the minimum score had to be 13 and the maximum score 39, so this range was divided into three proportional parts corresponding to the three levels of feedback.
The procedure described above allowed us to cross the discursive content and the level of feedback in each category and subcategory. Finally, an overall level of feedback per subcategory was obtained by summing the scores with all groups together to determine which were the most commented on topics. These scores were also distributed in the three feedback ranges: low (49–67 points), medium (68–85 points), and high (86–103 points).

3. Results

Table 3 summarizes the participants’ positive and negative perceptions and some of their most representative quotes. In addition, Table 4 shows the level of feedback from each group and the most discussed to the least discussed topics.

3.1. Previous Experience with Technology, Social Networks, or Psychosocial Programs

The participants presented low to medium feedback on this topic. However, the caregivers provided clear and complete answers (high level of feedback = 29 points) in the technology subcategory, indicating the various devices they had and the uses they gave them, as described below.
The caregivers had been using cell phones, computers, and/or tablets for personal and/or work purposes (e.g., calls, messages, photographs, Internet) for several years. On the other hand, older adults with MCI and PWD tended to use landlines and/or cell phones to maintain social contact or in the case of emergencies. They also used computers when they attended the Memory Workshops or Memory Clinic. They did not use other technological devices because they did not like them, found them difficult to use, or did not dare.
The elderly with MCI and PWD did not use any social networks, while the caregivers tended to use Facebook, Instagram, or Twitter. Regarding the psychosocial programs, few professionals reported having experience with these types of programs, finding them easy to use on a tablet and with functions for the elderly person and the caregiver, but with the disadvantage of not being highly personalized.

3.2. General Perception of ehcoBUTLER

3.2.1. Acceptability (Appearance, Frequency of Use, and Usefulness)

The participants showed medium feedback in this category, showing ideas that were not as developed or that were limited to responding affirmatively or negatively to another participant’s idea. Regarding their perceptions, older adults with MCI, PWD, and the professionals liked the appearance of ehcoBUTLER because of its light colors, the background was not overloaded with elements, and the font type and size. Participants with MCI and PWD stated that they would like to use the platform from every day to a few times a week or in their free time, for an hour or an hour and a half.
However, the caregivers indicated that their family members would only use it when they attended the center, and not at home, due to their lack of computer skills, cognitive impairment, and that the platform was not very personalized. Professionals also perceived these difficulties. Nevertheless, the caregivers perceived it to be useful in improving the mood of their relatives, even if they did not perform the activities correctly. Older adults with MCI and PWD found it useful to improve their memory, learn new things, relax, or as entertainment.

3.2.2. Usability (Use of Computer, Tablet or Cell Phone, and Characteristics of Technological Devices)

Participants presented a low to medium level of feedback on this topic as they responded without explaining the reason for their choice, or their answers could have been further elaborated. Nevertheless, it was possible to identify in their perceptions that people with MCI would prefer to use ehcoBUTLER through a computer. The caregivers preferred for their relatives to use it on a computer or tablet due to the size of their screens. Some professionals supported the tablet for this population because of the intermediate screen size while other professionals supported the cell phone because older adults usually already have one. The PWD also preferred the cell phone for its portability or because it was the cheapest option. However, the participants agreed that the device should have a large touch screen for ease of use compared to a mouse or keyboard.

3.2.3. Difficulties (Internet Connection, Computer Skills and Motivation)

The participants provided low feedback in this category. However, the professionals presented a medium level of feedback (19 points) in the computer skills subcategory, providing some examples of possible difficulties in its use by the population with cognitive impairment, as is shown below.
The professionals considered it necessary to have computer skills to use the software (chat, password creation, login, enlarge the screen) and hardware (mouse, keyboard), and that it could be difficult for older people; even more so when considering their cognitive impairment, because they could forget important data such as their password. Furthermore, the professionals considered it difficult for elderly people to have the Internet at home, because it is not indispensable for them, and would not be cost-effective for them to pay it just to use ehcoBUTLER. They also pointed out that older adults might be disinterested or discouraged if they perceive its use as an imposition on their family members.

3.2.4. Suggestions (Appearance, Type of Activities, Characteristics of the Activities and Accessibility)

This category had low feedback from the participants, except in the subcategory of the type of activities where the PWD presented medium feedback (23 points), indicating that it was not necessary to add more activities to ehcoBUTLER. However, the other participants recommended making certain improvements, as described below.
To improve ehcoBUTLER’s appearance, some caregivers suggested the option of customizing it, and some professionals recommended large icons and a small amount of text. Regarding the type of activities, some elderly with MCI wished to add physical exercises and more cognitive exercises. Some caregivers recommended voice command calls and virtual routes for their family members to practice moving from one place to another in their city, even if they could not do it physically.
Regarding the characteristics of the activities, older adults with MCI wanted to repeat the exercises in which they failed. The caregivers suggested customizing the exercises according to each person’s interests. To improve accessibility, some professionals recommended offline or USB content as well as pre-training for the users.

3.3. Perceptions of the ehcoBUTLER Modules

3.3.1. Healthy Lifestyle Module

In this category, the participants presented a high level of feedback in the subcategory of usefulness of the healthy lifestyle recommendations (102 points) and the Calendar (92 points), while they gave medium feedback (79 points) on the Task List. Overall, the participants gave low feedback on suggestions for improving these tools. Their perceptions are shown below.

Calendar

EhcoBUTLER will have a Calendar for entering important dates such as birthdays or doctor’s appointments. Older adults with MCI, PWD, and the professionals perceived it as useful for helping users to remember important dates, given their memory problems. However, some professionals and most caregivers felt that people with cognitive impairment would not be able to use it independently, so they would not enjoy its benefits.
Several professionals suggested incorporating the prioritization of appointments through eye-catching reminders with sounds and that they should be made a day before the appointment for the elderly and their relatives, even if they were not using the platform. On the other hand, some caregivers recommended that a professional help their relatives to manage this tool.

Task List

In ehcoBUTLER’s Task List, users would be able to record their daily life activities and receive reminders about them. Most of the PWD and some elderly with MCI found it useful for its reminders as they had memory problems. However, one participant with MCI preferred to continue taking notes on paper, and some professionals also supported this, because it would be easier for older adults to take them to where they needed them such as to the supermarket.
Nevertheless, some professionals considered the Task List as being useful because it would allow for elderly people to get into the habit of typing and having everything on the same device. However, some caregivers felt that the cognitive impairment of their relatives would prevent them from using it independently.
Several professionals suggested that the Task List should be improved by differentiating it from the Calendar or by merging them into one called “reminders”. They also recommended that the platform should send an appointment reminder to the elderly person and the family member at the same time, even if they were outside the platform.

Healthy Lifestyle Recommendations

EhcoBUTLER will provide recommendations of healthy habits by proposing activities inside or outside the platform, according to the user’s needs. Most of the older adults with MCI, PWD, and the professionals found the personalized nutritional advice especially helpful. However, most caregivers felt that their relatives would forget the advice or would not apply it in real life. Regarding improvements, several professionals suggested direct access to the advice, motivational notifications of new content, and to keep the previous recommendations available.

3.3.2. Leisure and Free Time Module

The participants provided medium feedback on the usefulness of the Market (84 points) and the Internet (77 points). On the other hand, they had a low level of feedback when suggesting improvements for these tools. Their perceptions are presented below.

Market

Through the Market, users are able to incorporate new apps to the system such as games, books, etc. Most older adults with MCI and PWD perceived this as useful for entertainment, learning, and working on their memory, mainly through games or books. However, some participants with MCI preferred activities outside the home such as courses or playing cards.
Most professionals considered that this could be useful if the caregiver selected the activities according to the interests of the older person, in order to facilitate their identification and use. In terms of suggestions for improvement, several professionals suggested providing direct access to the activities previously determined by the caregivers.

Internet

The platform will have an easy and direct access to navigate across different websites. The participants with MCI and PWD wanted to use it to visit websites of interest or to do online paperwork, if it was easy to use and they were taught how to use it. Several professionals also found it useful if access to certain pages was customized to make it easier for the older person to use. Few caregivers felt that this tool could be useful if it had different webpages already set; otherwise, it could be a risky use, for example, pages that involve payments such as hotels.
In terms of suggestions for improvement, few professionals indicated that, in addition to customizing access to certain webpages, the users should have the option of accessing related sites.

3.3.3. Emotional Care Module

The participants provided a high level of feedback on the usefulness of the Book of life, Mood assessment, and Relaxation exercises (88, 103, 99 points respectively), while it was medium on My memories (79 points). There was low feedback in the suggestions for their improvement. These perceptions are shown below.

Book of Life

In ehcoBUTLER, users are able to write their autobiography (complementing it with images, audio, video), and share it with their family and friends. Older adults with MCI and PWD felt that this tool would allow them to share with their descendants what they were doing. Some professionals also found it useful for the therapeutic benefits of reminiscence. However, few professionals and caregivers perceived that it could be a burden for the caregiver to digitize the photographs and accompany the family member during the reminiscing process.
Regarding improvements, some professionals recommended that each person should express their autobiographical memories according to their preferences (writing, speaking, or singing). In addition, one caregiver suggested that the platform narrate them for the elderly.

My Memories

Users will also be able to save photos, music, or videos as memories and will have the option to share them. The participants with MCI, PWD, professionals, and some caregivers considered it useful for evoking meaningful and motivating memories of some moment in the life of the elderly person. However, few caregivers perceived it negatively, because they would not have enough time to help their relatives to elaborate these memories. Regarding possible improvements, few professionals recommended the use of real photographs, and not images downloaded from the Internet.

Mood Assessment

EhcoBUTLER monitors the users’ mood by asking them how they feel when they sign in and sign out. This will allow for the early detection of depressive or anxious symptoms that will alert the professionals. Most of the participants with MCI and PWD perceived it to be useful because it would be a way to take care of them, especially when they were in a low mood when remembering certain events. Several professionals and caregivers also perceived it positively for keeping track of mood, where the professionals added the benefit of being alerted to the situation and adopting content according to it. However, some caregivers and professionals indicated the difficulty that some older people with cognitive impairment might give an automatic response, which did not truly reflect how they felt.
In terms of improvements, several professionals suggested that users should only be asked once a day or every 12 h how they felt to avoid repetitive questions if they accessed the platform several times a day. One caregiver recommended that the question and response options be asked orally, not just in writing.

Relaxation Exercises

These exercises consist of videos about nature with mindfulness techniques. Most of the elderly with MCI, PWD, and half of the caregivers found them useful to help older adults to stop focusing on possible worries or negative thoughts. However, some people with cognitive impairment, a caregiver, and several professionals preferred that the older adults relax by taking walks in nature, which in turn would contribute to their physical health.
A few participants with MCI suggested incorporating documentaries to relax. Several professionals and a few caregivers recommended that the relaxation exercises be accompanied by scenarios with real images.

3.3.4. Social Care Module

The participants presented a medium level of feedback on the usefulness of videoconferencing and email (83 points), while they presented a low one when suggesting improvements for these tools (56 points). Their perceptions are shown below.

Video Conferencing and Email

Individuals with MCI and PWD as well as the professionals and caregivers felt that videoconferencing would be useful for older adults to make contact and see people who were far away, if it was easy to use. On the other hand, the professionals and caregivers perceived emails negatively, because the population with cognitive impairment would not be able to use it. However, some professionals and a caregiver agreed in recommending that these tools would be improved if the contacts had an icon with their image and direct access. In addition, they suggested that users could send their email message via a voice memo.

3.3.5. Cognitive Module

EhcoBUTLER has two versions of the GRADIOR program: one free and one paid version. Participants gave a high level of feedback (86 points) on the acceptability of the paid version; while they had low feedback on the amount they were willing to pay and on suggestions for improvements. On the usefulness of the free version, they also had low feedback. Their perceptions are described below.

Free Version of GRADIOR

This version has cognitive stimulation and training exercises to keep cognitive functions active in general. Older adults with MCI, PWD, and the caregivers considered it useful for working on different cognitive functions, especially memory.

Paid Version of GRADIOR

This version contains specialized cognitive training and rehabilitation exercises for impaired cognitive functions, so it may be subject to payment. Some older adults with MCI and PWD had a negative perception about paying for it because they were pensioners, and their financial income was low. However, other participants with MCI were only willing to pay if the amount was small. Several professionals also thought that users might pay if it was a small fee and if they came to a center to encourage adherence by having the support of a therapist. Some caregivers were willing to pay on a month-to-month and wanted the flexibility to decide whether they wanted to continue paying or not, depending on their family member’s level of improvement.
Regarding the amount to be paid, few participants indicated an exact fee: EUR 20 per month estimated by people with MCI; while between EUR 3 to EUR 15 per month, or EUR 300 per year, as estimated by the professionals. As for possible improvements, few professionals suggested that this version should be made available as an add-on within a care package in a nursing home or center to make it more accessible at a flat rate per year.

3.3.6. Ergonomic Design

The participants had a high level of feedback on the usefulness of the avatar (100 points). On the other hand, they had a medium level on the suggestions for improvement and a low level on its appearance. Their perspectives are shown below.

Avatar

This virtual character will assist the users in audio and text at every step of the platform. The participants with MCI, PWD, professionals, and caregivers agreed that the avatar would be useful in facilitating the use of ehcoBUTLER by explaining and reminding the users of the instructions.
Regarding the characteristics of the avatar as a young man, the PWD indicated that they liked it as it was. Older adults with MCI and caregivers were indifferent to the sex of the avatar; what they considered important was its helping role. However, some professionals and a few caregivers recommended that the avatar have the voice and image of a real person. Other professionals suggested being able to choose whether the avatar would explain the instructions orally, written, or both.

4. Discussion

This was a qualitative study that set up focus groups of older adults with MCI, PWD, professionals, and caregivers to improve the development of ehcoBUTLER, a tablet platform aimed at promoting the health and quality of life in the elderly population. Formally, it should not be considered as just a study of a specific platform, but the evaluation of the main features for the development of tablet-based software for people with MCI or dementia. EhcoBUTLER has different apps to support the independent life and well-being of people with cognitive impairment. There are several systems that are limited to a single app to avoid the mental load on the elderly; however, a system with various apps is also possible, although it requires additional effort to adapt it [12]. The findings of this study can help in the future development of tablet software and apps to promote the integral health of this population.
In general, the participants showed acceptability toward the appearance and usefulness of ehcoBUTLER to promote different areas and were interested in using its apps frequently. The perceived usefulness and interest of the participants of this study aligns with other research in which ehcoBUTLER was considered useful and interesting by potential users and stakeholders [23]. Other investigations have also found that older adults with MCI and PWD are interested in using technologies that promote their health [22], and that aesthetics are important in significantly impacting the perceived suitability of the technology [45].
However, the professionals and caregivers felt that cognitive impairment, lack of computer skills, and lack of motivation of the elderly could make it difficult for them to take advantage of ehcoBUTLER. These results are in line with other studies, which have identified barriers to technological opportunities for the elderly such as their declining functions, lack of technological skills, and may be discouraged from using technology for fear of finding it difficult to use or understand [10,11,13]. In this study, the professionals also pointed out that older adults often do not have access to the Internet. This is supported by a report in which 20–40% of older people in Spain have used the Internet at some time [46]. Therefore, the suggestion of the professionals to provide ehcoBUTLER content offline or via USB is essential to improve its accessibility. In fact, other research supports the alternative, where the elderly can download the apps’ content to access them without an Internet connection [22]. This should be considered in the development of platforms for older people at home.
In this study, the professionals also recommended that potential users receive training to learn how to use ehcoBUTLER. This is important, because participants with cognitive impairment used landlines and cell phones to make calls or in case of emergency and were afraid of using other technologies. Other studies have also identified that receiving training and learning about the benefits of technologies can make the difference in showing interest in them [47] and in striving to master their use, even if they are not perceived as easy at first [48]. Consequently, it is necessary to keep in mind the technological gap in older people and provide them with training to make these technologies familiar to them. This would not only improve the accessibility of the platforms, but also their acceptability and usability.
To further promote ehcoBUTLER usability, the participants preferred to use it on an inexpensive, portable device with a large touch screen. These results on the characteristics of the technological device are supported by other investigations because touch screens facilitate the interaction of older adults with technological devices [49] and their portability facilitates the application of the intervention [17]. The low cost of the device is also an important consideration, since the incomes of the elderly decrease as they get older [46]. In this regard, touch screen tablets are a relatively low-cost option for the elderly [24]. However, governments should consider providing free apps to promote independent living as a relevant measure to avoid earlier institutionalization. Indeed, another study found that professionals expected the technological intervention to be financed by the National Health System, companies, or centers [23].
In the present study, the participants also recommended customizing the platform according to the interests of the elderly as well as adding other activities and features. Another study also highlighted the importance of personalizing the technological tool and taking into account the considerations of the elderly, because it can facilitate a meaningful and positive engagement of the older population with it [50]. Now, we will discuss the apps in ehcoBUTLER where the participants had a high level of feedback and, therefore, a higher level of interest. This will help in the development and improvement of future platforms to contain the apps that most interest this population.
The participants showed a high level of feedback on the usefulness of these tools: Mood Assessment, Healthy Lifestyle Recommendations, Avatar, Relaxation Exercises, Calendar, and Book of Life. The elderly with MCI, PWD, the caregivers, and professionals had a positive perception of their usefulness. At the same time, the caregivers and professionals highlighted that older adults with cognitive impairment would need help to use them and take advantage of their benefits. These difficulties coincide with those they noted in the general perception of ehcoBUTLER, so their suggestions for improving each app as well as customization and training could encourage more independent use. Indeed, research has shown that, in order to break down barriers and benefit everyone, the perceptions of the end users and stakeholders must be considered in the development of technological products and services [35].
In the present study, most of the tools with a high level of feedback belonged to the Emotional Care Module (Mood Assessment, Relaxation Exercises, and Book of Life). Other research has indicated that people with cognitive impairment are more at risk of suffering from depression or anxiety [3,51], so it makes sense that in this study, the participants showed great interest in caring for the emotional and relaxation state of the older adults. In addition, other studies using a reminiscence app [15] and virtual reality [16] found that they improved the well-being and quality of life of the elderly with cognitive impairment.
Related to the quality of life, the participants of the present study also showed great interest in apps that promoted a healthy lifestyle (Healthy Lifestyle Recommendations and Calendar). There is evidence that cognitive decline influences older adults to feel less able to make decisions about their daily activities [52]. Therefore, it makes sense that in the present study, the participants showed great interest in apps that supported their daily lives, especially in the calendar function and nutritional advice. Other research has supported the recommendations that the elderly maintain a nutritional balance and the use of a calendar to be more oriented in their activities, among others, are useful for them to maintain, as much as possible, one of the most precious capacities: autonomy to take care of themselves and govern their actions [53]. In addition, there is a calendar app [20] and a notebook app [21] that have been reported to contribute to this population’s satisfaction with their lives.
The participants in this study also had special interest in the avatar, because of its potential usefulness in explaining and remembering what to do on the platform. These results coincide with other research that highlights the avatar’s role as a guide, promoting a positive experience and facilitating its implementation [54]. The fact that ehcoBUTLER will have ergonomic tools that will make its use easier and more enjoyable such as the avatar is a key element for its introduction, especially when the target population is older people with cognitive impairment. This should also be considered in the development of platforms aimed at these target users.
In relation to the cognitive area, the participants showed a high interest discussing the paid version of GRADIOR. The older adults did not want to pay for it or only wanted to pay a small amount because they were pensioners. The caregivers were willing to pay according to the improvement in their family members. These results are consistent with an earlier ehcoBUTLER study [23] in which the end users wished to pay the least amount, while the caregivers wanted to pay depending on its usefulness or preferred it to be financed by other institutions. Once again, the results indicate that the economic issue should be seriously considered in the platforms for this population.
On the other hand, it is important to note that ehcoBUTLER focused mainly on promoting the social area, but in the present study, the social module did not have a high level of feedback. Nevertheless, the option of sharing the Book of Life (which was highly valued in the Emotional Module) is also part of the Social Module because it involves interaction with other people [23]. The participants’ high interest indicates their preference for this social activity (sharing the Book of Life) rather than videoconferencing or email. This is consistent with other studies in which reminiscence was the most widely used social intervention compared to videoconferencing and others [55]. In addition, email has been found to represent a cognitive load for older subjects due to the various steps they must remember to do tasks such as saving and managing attachments [56]. These aspects should be considered to improve the selection and development of social apps aimed at this population.
In this study, the leisure and free time module apps also did not have a high feedback level. However, in the general perception of ehcoBUTLER, the participants showed interest in its use for entertainment. This discrepancy can be explained by their perceptions that the elderly would need help from their caregivers to configure these tools and preferred them to do activities outside the home. In fact, some participants also supported activities outside the home rather than the Relaxation Exercises in the Emotional Care Module. Activities outside the home are clearly beneficial for the well-being of the elderly, but if they cannot go out due to some limitation, there are activities that they can do at home [57]. In these cases, tablet platforms such as ehcoBUTLER offer them with a good alternative or complement for a more active and healthy life. In this sense, the caregivers play a facilitating role in the use of technology by older adults with cognitive impairment [48]. However, it is important to simplify this task and provide them a respite [50]. This could be achieved with appropriately adapted technologies for the elderly population with MCI or dementia.
The present study conducted focus groups to gather the points of view of older people with cognitive impairment, caregivers, and professionals to further develop and better adapt the different ehcoBUTLER features. This is line with other studies. It has been shown that end-user and stakeholder perceptions are essential for the ultimate development of the technology to benefit everyone [35]. In addition, focus groups have been proven to be useful to gather and understand their opinions, needs, particularities, and attitudes [30,31]. In fact, in other investigations, the focus groups of PWD yielded key aspects for the design, conceptualization, and refinement of the technologies aimed at this population [32,33]. This technique should be considered in the development of psychosocial stimulation software for the elderly with cognitive impairment.
Finally, it is important to understand the limitations of this study. First, valuable data may have been lost because nonverbal responses were not analyzed. Second, there were no follow-up interviews and some aspects of the focus group dialogue could not be further developed [40], for example, when the participants showed a low or medium level of feedback. Third, the participants already had previous experience with GRADIOR, so their results may be different from those without such experience. However, several studies support the results presented, and knowing a little bit about the uses of technologies was good for their understanding of the objectives of the study. Indeed, having that experience allowed them to have a point of comparison to make suggestions for improvements in ehcoBUTLER or other tablet apps.
Fourth, the participants’ responses could have been influenced by being at the INTRAS Foundation, where they had a relationship with GRADIOR (as users, caregivers of users, or employees of the foundation). However, the platform presented to them in the focus groups was ehcoBUTLER, and its cognitive module was inquired without specifying that it would be GRADIOR.
Fifth, PWD were included in this study to evaluate ehcoBUTLER, which is especially aimed at older adults with MCI. However, the coincidence of the participants’ perceptions on the positive aspects and features to be improved indicates their acceptability with the required adaptations to be made.
For future work, more studies are needed that focus on the opinions, ideas, and attitudes of older people with cognitive impairment, along with those of the stakeholders, regarding platforms with different apps for health care, wellness, and psychosocial stimulation. In addition, using joint methodologies such as focus groups with interviews, questionnaires, and/or surveys can allow for more knowledge to be acquired for the appropriate development of this kind of tool in a digital era. Future research focused on the above aspects could contribute to providing older adults with MCI/dementia with innovative and adapted platforms that promote their quality of life, in which they could receive care and health services with greater access, efficiency, dynamism, and reduce the costs of such services.

5. Conclusions

The main purpose of this study was to explore the perceptions and level of feedback of the potential primary users (older adults with MCI and PWD) and actors involved in their care (professionals and caregivers) regarding a tablet platform (ehcoBUTLER) to improve its development according to their points of view. In conclusion, the development of ehcoBUTLER is properly oriented, because the participants showed acceptability toward the platform. Its appearance and the tools of the emotional module, healthy lifestyle, cognitive care, and ergonomic design were key aspects in such acceptability. However, usability, sustainability, and accessibility improvements are needed. These improvements could be properly achieved by making ehcoBUTLER apps more intuitive and personalized and offering pre-training to learn how to use them (due to older people’s unfamiliarity with technology) as well as promoting that the platform could be used on large touch screen devices, that had offline/USB content, and was part of a low-cost or free care package. These improvements, being based on the perceptions of the potential users and stakeholders, could encourage users to have a positive experience with ehcoBUTLER and favor its future implementation.
The suggestions for improving ehcoBUTLER were mainly provided by the professionals and caregivers, while the elderly focused on how they felt about the platform. Their different perspectives allows for a more complete vision to advance its development and to better meet their needs and preferences. This could promote that in the future, it could benefit older adults with MCI or mild dementia to be active agents in their own well-being. This could also help caregivers in their role and to have some respite, if the older adults need as little help as possible to use it as well as to provide professionals with a platform for different areas of intervention. Finally, the findings of this study could contribute to the future development and improvement in tablet platforms and apps that promote the integral health of this population.

Author Contributions

Conceptualization, M.Á.F.-M.; Methodology, L.M.C.-S., E.I. and J.M.T.-G.; Formal analysis, M.C.S.-G., M.V.M.-C. and S.V.-C.; Investigation, L.M.C.-S. and E.I.; Resources, J.M.T.-G., M.C.S.-G. and E.P.-V.; Writing—original draft, L.M.C.-S.; Writing—review and editing, L.M.C.-S., M.Á.F.-M., J.M.T.-G. and M.V.P.-B.; Visualization, L.M.C.-S. and J.M.T.-G.; Supervision, M.Á.F.-M. and J.M.T.-G.; Project administration, M.Á.F.-M. and J.M.T.-G. All authors have read and agreed to the published version of the manuscript.

Funding

This research received no external funding.

Institutional Review Board Statement

The study was conducted in accordance with the Declaration of Helsinki and approved by the Ethics Committee of Zamora Provincial Hospital (Protocol Code 387-E.C, approved on 17 May 2017).

Informed Consent Statement

Informed consent was obtained from all subjects involved in the study.

Data Availability Statement

The data presented in this study are available on reasonable request from the corresponding author.

Conflicts of Interest

The authors declare no conflict of interest.

References

  1. Holwerda, T.J.; Beekman, A.T.F.; Deeg, D.J.H.; Stek, M.L.; Van Tilburg, T.G.; Visser, P.J.; Schmand, B.; Jonker, C.; Schoevers, R.A. Increased risk of mortality associated with social isolation in older men: Only when feeling lonely? Results from the Amsterdam Study of the Elderly (AMSTEL). Psychol. Med. 2012, 42, 843–853. [Google Scholar] [CrossRef] [PubMed]
  2. Morán, A.L.; Ramírez-Fernández, C.; Meza-Kubo, V.; Orihuela-Espina, F.; García-Canseco, E.; Grimaldo, A.I.; Sucar, E. On the Effect of Previous Technological Experience on the Usability of a Virtual Rehabilitation Tool for the Physical Activation and Cognitive Stimulation of Elders. J. Med. Syst. 2015, 39, 104. [Google Scholar] [CrossRef] [PubMed]
  3. Wettstein, M.; Seidl, U.; Wahl, H.-W.; Shoval, N.; Heinik, J. Behavioral Competence and Emotional Well-Being of Older Adults with Mild Cognitive Impairment. Comparison with Cognitively Healthy Controls and Individuals with Early-Stage Dementia. GeroPsych 2014, 27, 55–65. [Google Scholar] [CrossRef]
  4. Machulda, M.M.; Pankratz, V.S.; Christianson, T.J.; Ivnik, R.J.; Mielke, M.M.; Roberts, R.O.; Knopman, D.S.; Boeve, B.F.; Petersen, R.C. Practice effects and longitudinal cognitive change in normal aging vs. Incident mild cognitive impairment and dementia in the mayo clinic study of aging. Clin. Neuropsychol. 2013, 27, 1247–1264. [Google Scholar] [CrossRef] [Green Version]
  5. Mostaghel, R. Innovation and technology for the elderly: Systematic literature review. J. Bus. Res. 2016, 69, 4896–4900. [Google Scholar] [CrossRef]
  6. Cruz-Cunha, M.M.; Miranda, I.M.; Gonçalves, P. Handbook of Research on ICTs and Management Systems for Improving Efficiency in Healthcare and Social Care; IGI Global: Hershey, PA, USA, 2013; pp. 1–1322. [Google Scholar] [CrossRef] [Green Version]
  7. Gagnon, M.P.; Desmartis, M.; Labrecque, M.; Car, J.; Pagliari, C.; Pluye, P.; Frémont, P.; Gagnon, J.; Tremblay, N.; Légaré, F. Systematic review of factors influencing the adoption of information and communication technologies by healthcare professionals. J. Med. Syst. 2012, 36, 241–277. [Google Scholar] [CrossRef] [PubMed] [Green Version]
  8. Ahmad, K.A.B.; Khujamatov, H.; Akhmedov, N.; Bajuri, M.Y.; Ahmad, M.N.; Ahmadian, A. Emerging trends and evolutions for smart city healthcare systems. Sustain. Cities Soc. 2022, 80, 103695. [Google Scholar] [CrossRef]
  9. Kueider, A.M.; Parisi, J.M.; Gross, A.L.; Rebok, G.W. Computerized cognitive training with older adults: A systematic review. PLoS ONE 2012, 7, e40588. [Google Scholar] [CrossRef] [Green Version]
  10. Castilla, D.; Suso-Ribera, C.; Zaragoza, I.; Garcia-Palacios, A.; Botella, C. Designing icts for users with mild cognitive impairment: A usability study. Int. J. Environ. Res. Public Health 2020, 17, 5153. [Google Scholar] [CrossRef]
  11. Diaz-Orueta, U.; Etxaniz, A.; Gonzalez, M.F.; Buiza, C.; Urdaneta, E.; Yanguas, J. Role of cognitive and functional performance in the interactions between elderly people with cognitive decline and an avatar on TV. Univers. Access Inf. Soc. 2014, 13, 89–97. [Google Scholar] [CrossRef]
  12. Castilla, D.; Garcia-Palacios, A.; Bretón-López, J.; Miralles, I.; Baños, R.M.; Etchemendy, E.; Farfallini, L.; Botella, C. Process of design and usability evaluation of a telepsychology web and virtual reality system for the elderly: Butler. Int. J. Hum. Comput. Stud. 2013, 71, 350–362. [Google Scholar] [CrossRef]
  13. Arthanat, S.; Vroman, K.G.; Lysack, C.; Grizzetti, J. Multi-stakeholder perspectives on information communication technology training for older adults: Implications for teaching and learning. Disabil. Rehabil. Assist. Technol. 2019, 14, 453–461. [Google Scholar] [CrossRef] [PubMed]
  14. Alm, N.; Astell, A.; Ellis, M.; Dye, R.; Gowans, G.; Campbell, J. A cognitive prosthesis and communication support for people with dementia. Neuropsychol. Rehabil. 2004, 14, 117–134. [Google Scholar] [CrossRef] [Green Version]
  15. Astell, A.J.; Smith, S.K.; Potter, S.; Preston-Jones, E. Computer Interactive Reminiscence and Conversation Aid groups—Delivering cognitive stimulation with technology. Alzheimer’s Dement. Transl. Res. Clin. Interv. 2018, 4, 481–487. [Google Scholar] [CrossRef] [PubMed]
  16. Riaz, W.; Khan, Z.Y.; Jawaid, A.; Shahid, S. Virtual reality (Vr)-based environmental enrichment in older adults with mild cognitive impairment (mci) and mild dementia. Brain Sci. 2021, 11, 1103. [Google Scholar] [CrossRef]
  17. Irazoki, E.; Contreras-Somoza, L.M.; Toribio-Guzmán, J.M.; Jenaro-Río, C.; van der Roest, H.; Franco-Martín, M.A. Technologies for Cognitive Training and Cognitive Rehabilitation for People With Mild Cognitive Impairment and Dementia. A Systematic Review. Front. Psychol. 2020, 11, 648. [Google Scholar] [CrossRef]
  18. Manera, V.; Petit, P.D.; Derreumaux, A.; Orvieto, I.; Romagnoli, M.; Lyttle, G.; David, R.; Robert, P. “Kitchen and cooking”, a serious game for mild cognitive impairment and alzheimer’s disease: A pilot study. Front. Aging Neurosci. 2015, 7, 24. [Google Scholar] [CrossRef]
  19. Boot, W.R.; Andringa, R.; Harrell, E.R.; Dieciuc, M.A.; Roque, N.A. Older adults and video gaming for leisure: Lessons from the Center for Research and Education on Aging and Technology Enhancement (CREATE). Gerontechnology 2020, 19, 138–146. [Google Scholar] [CrossRef]
  20. Oksnebjerg, L.; Woods, B.; Waldemar, G. Designing the ReACT App to Support Self-Management of People with Dementia: An Iterative User-Involving Process. Gerontology 2019, 65, 673–685. [Google Scholar] [CrossRef]
  21. Chudoba, L.A.; Church, A.S.; Dahmen, J.B.; Brown, K.D.; Schmitter-Edgecombe, M. The development of a manual-based digital memory notebook intervention with case study illustrations. Neuropsychol. Rehabil. 2020, 30, 1829–1851. [Google Scholar] [CrossRef]
  22. LaMonica, H.M.; English, A.; Hickie, I.B.; Ip, J.; Ireland, C.; West, S.; Shaw, T.; Mowszowski, L.; Glozier, N.; Duffy, S.; et al. Examining internet and ehealth practices and preferences: Survey study of australian older adults with subjective memory complaints, mild cognitive impairment, or dementia. J. Med. Internet Res. 2017, 19, e7981. [Google Scholar] [CrossRef] [PubMed] [Green Version]
  23. Contreras-Somoza, L.M.; Irazoki, E.; Castilla, D.; Botella, C.; Toribio-Guzmán, J.M.; Parra-Vidales, E.; Suso-Ribera, C.; Suárez-López, P.; Perea-Bartolomé, M.V.; Franco-Martín, M.Á. Study on the Acceptability of an ICT Platform for Older Adults with Mild Cognitive Impairment. J. Med. Syst. 2020, 44, 120. [Google Scholar] [CrossRef]
  24. Hitch, D.; Swan, J.; Pattison, R.; Stefaniak, R. Use of touchscreen tablet technology by people with dementia in homes: A scoping review. J. Rehabil. Assist. Technol. Eng. 2017, 4, 205566831773338. [Google Scholar] [CrossRef] [PubMed]
  25. Castilla, D.; Garcia-Palacios, A.; Miralles, I.; Breton-Lopez, J.; Parra, E.; Rodriguez-Berges, S.; Botella, C. Effect of Web navigation style in elderly users. Comput. Human Behav. 2016, 55, 909–920. [Google Scholar] [CrossRef]
  26. Hill, R.; Betts, L.R.; Gardner, S.E. Older adults experiences and perceptions of digital technology: (Dis)empowerment, wellbeing, and inclusion. Comput. Human Behav. 2015, 48, 415–423. [Google Scholar] [CrossRef] [Green Version]
  27. Contreras-Somoza, L.M.; Irazoki, E.; Toribio-Guzmán, J.M.; de la Torre-Díez, I.; Díaz-Baquero, A.A.; Parra-Vidales, E.; Perea-Bartolomé, M.V.; Franco-Martín, M.Á. Usability and user experience (UX) of cognitive intervention technologies for elderly people with mild cognitive impairment (MCI) or dementia. A systematic review. Front. Psychol. 2021, 12, 636116. [Google Scholar] [CrossRef]
  28. Edmunds, M.; Hass, C.; Holve, E. Consumer Informatics and Digital Health: Solutions for Health and Health Care, 1st ed.; Springer: Cham, Switzerland, 2019; ISBN 978-3-319-96906-0. [Google Scholar]
  29. Trujillo Suárez, M.; Aguilar, J.J.; Neira, C. Los métodos más característicos del diseño centrado en el usuario-DCU-, adaptados para el desarrollo de productos materiales. Iconofacto 2016, 12, 215–236. [Google Scholar] [CrossRef] [Green Version]
  30. Boman, I.L.; Lundberg, S.; Starkhammar, S.; Nygård, L. Exploring the usability of a videophone mock-up for persons with dementia and their significant others. BMC Geriatr. 2014, 14, 49. [Google Scholar] [CrossRef] [Green Version]
  31. Setia, M.S. Evolution of Ethics in Clinical Research and Ethics Committee. Indian J. Dermatol. 2017, 62, 367–370. [Google Scholar] [CrossRef]
  32. Siriaraya, P.; Ang, C.S. Developing Virtual Environments for older users: Case studies of virtual environments iteratively developed for older users and people with dementia. In Proceedings of the 2017 2nd International Conference on Information Technology (INCIT), Nakhonpathom, Thailand, 2–3 November 2017; pp. 1–6. [Google Scholar]
  33. Mulvenna, M.; Zheng, H.; Bond, R.; McAllister, P.; Wang, H.; Riestra, R. Participatory design-based requirements elicitation involving people living with dementia towards a home-based platform to monitor emotional wellbeing. In Proceedings of the 2017 IEEE International Conference on Bioinformatics and Biomedicine, (BIBM), Kansas City, MO, USA, 13–16 November 2017; pp. 2026–2030. [Google Scholar]
  34. Menéndez Álvarez-Dardet, S.; Lorence Lara, B.; Pérez-Padilla, J. Older adults and ICT adoption: Analysis of the use and attitudes toward computers in elderly Spanish people. Comput. Human Behav. 2020, 110, 106377. [Google Scholar] [CrossRef]
  35. Menghi, R.; Papetti, A.; Germani, M. Product Service Platform to improve care systems for elderly living at home. Health Policy Technol. 2019, 8, 393–401. [Google Scholar] [CrossRef]
  36. Bayles, K.; McCullough, K.; Tomoeda, C. Cognitive-Communication Disorders of MCI and Dementia: Definition, Assessment and Clinical Management, 3rd ed.; Plural Publishing: San Diego, CA, USA, 2018; ISBN 978-1-63550-060-8. [Google Scholar]
  37. Giebel, C.M.; Sutcliffe, C.; Challis, D. Activities of daily living and quality of life across different stages of dementia: A UK study. Aging Ment. Health 2015, 19, 63–71. [Google Scholar] [CrossRef] [PubMed]
  38. Summers, M.J.; Saunders, N.L.J. Neuropsychological measures predict decline to alzheimer’s dementia from mild cognitive impairment. Neuropsychology 2012, 26, 498–508. [Google Scholar] [CrossRef] [PubMed]
  39. Ballestín González, B.; Fàbregues Feijóo, S. La Práctica de la Investigación Cualitativa en Ciencias Sociales y de la Educación; Editorial UOC: Barcelona, Spain, 2018; ISBN 9788491802129. [Google Scholar]
  40. Liamputtong, P. Focus Group Methodology: Principles and Practice; SAGE Publications Ltd.: New York, NY, USA, 2011; ISBN 9781847879097. [Google Scholar]
  41. Petersen, R.C.; Caracciolo, B.; Brayne, C.; Gauthier, S.; Jelic, V.; Fratiglioni, L. Mild cognitive impairment: A concept in evolution. J. Intern. Med. 2014, 275, 214–228. [Google Scholar] [CrossRef]
  42. Franco-Martín, M.A.; Diaz-Baquero, A.A.; Bueno-Aguado, Y.; Cid-Bartolomé, M.T.; Parra Vidales, E.; Perea Bartolomé, M.V.; de la Torre Díez, I.; van der Roest, H.G. Computer-based cognitive rehabilitation program GRADIOR for mild dementia and mild cognitive impairment: New features. BMC Med. Inform. Decis. Mak. 2020, 20, 274. [Google Scholar] [CrossRef]
  43. Toribio-Guzmán, J.M.; Parra Vidales, E.; Viñas Rodríguez, M.J.; Bueno Aguado, Y.; Cid Bartolomé, M.T.; Franco-Martin, M.A. Rehabilitación Cognitiva por Ordenador en Personas Mayores: Programa GRADIOR. Aula 2018, 24, 61–75. [Google Scholar] [CrossRef] [Green Version]
  44. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders (DSM-5®), 5th ed.; APA: Arlington, VA, USA, 2013; ISBN 978-0-89042-554-1. [Google Scholar]
  45. Greenhalgh, T.; Wherton, J.; Papoutsi, C.; Lynch, J.; Hughes, G.; A’Court, C.; Hinder, S.; Fahy, N.; Procter, R.; Shaw, S. Beyond adoption: A new framework for theorizing and evaluating nonadoption, abandonment, and challenges to the scale-up, spread, and sustainability of health and care technologies. J. Med. Internet Res. 2017, 19, e8775. [Google Scholar] [CrossRef] [Green Version]
  46. Instituto de Mayores y Servicios Sociales [IMSERSO]. Informe 2018: Las Personas Mayores en España. Datos Estadísticos Estatales y por Comunidades Autónomas; IMSERSO: Madrid, Spain, 2021.
  47. Instituto de Mayores y Servicios Sociales [IMSERSO]. Informe 2016: Las Personas Mayores en España. Datos Estadísticos Estatales y por Comunidades Autónomas; IMSERSO: Madrid, Spain, 2017.
  48. Blok, M.; van Ingen, E.; de Boer, A.H.; Slootman, M. The use of information and communication technologies by older people with cognitive impairments: From barriers to benefits. Comput. Human Behav. 2020, 104, 106173. [Google Scholar] [CrossRef]
  49. Irazoki, E.; Sánchez-Gómez, M.C.; Contreras-Somoza, L.M.; Toribio-Guzmán, J.M.; Martín-Cilleros, M.V.; Verdugo-Castro, S.; Jenaro-Río, C.; Franco-Martín, M.A. A Qualitative Study of the Cognitive Rehabilitation Program GRADIOR for People with Cognitive Impairment: Outcomes of the Focus Group Methodology. J. Clin. Med. 2021, 10, 859. [Google Scholar] [CrossRef]
  50. Kerssens, C.; Kumar, R.; Adams, A.E.; Knott, C.C.; Matalenas, L.; Sanford, J.A.; Rogers, W.A. Personalized Technology to Support Older Adults with and Without Cognitive Impairment Living at Home. Am. J. Alzheimers. Dis. Other Demen. 2015, 30, 85–97. [Google Scholar] [CrossRef]
  51. Mirza, S.S.; Ikram, M.A.; Bos, D.; Mihaescu, R.; Hofman, A.; Tiemeier, H. Mild cognitive impairment and risk of depression and anxiety: A population-based study. Alzheimer’s Dement. 2017, 13, 130–139. [Google Scholar] [CrossRef] [PubMed]
  52. Kesavayuth, D.; Liang, Y.; Zikos, V. An active lifestyle and cognitive function: Evidence from China. J. Econ. Ageing 2018, 12, 183–191. [Google Scholar] [CrossRef]
  53. Ramos Cordero, P.; Yubero, R. Tratamiento no farmacológico del deterioro cognitivo. Rev. Esp. Geriatr. Gerontol. 2016, 51, 12–21. [Google Scholar] [CrossRef]
  54. Machidon, O.M.; Duguleana, M.; Carrozzino, M. Virtual humans in cultural heritage ICT applications: A review. J. Cult. Herit. 2018, 33, 249–260. [Google Scholar] [CrossRef]
  55. Bech Mikkelsen, A.S.; Petersen, S.; Dragsted, A.C.; Kristiansen, M. Social interventions targeting social relations among older people at nursing homes: A qualitative synthesized systematic review. Inquiry 2019, 56, 0046958018823929. [Google Scholar] [CrossRef] [PubMed]
  56. Sayago, S.; Blat, J. Telling the story of older people e-mailing: An ethnographical study. Int. J. Hum. Comput. Stud. 2010, 68, 105–120. [Google Scholar] [CrossRef]
  57. Lee, C.T.; Yeh, C.J.; Lee, M.C.; Lin, H.S.; Chen, V.C.H.; Hsieh, M.H.; Yen, C.H.; Lai, T.J. Leisure activity, mobility limitation and stress as modifiable risk factors for depressive symptoms in the elderly: Results of a national longitudinal study. Arch. Gerontol. Geriatr. 2012, 54, e221–e229. [Google Scholar] [CrossRef]
Figure 1. The main categories and subcategories.
Figure 1. The main categories and subcategories.
Ijerph 19 06761 g001
Figure 2. The subcategories of the ehcoBUTLER modules.
Figure 2. The subcategories of the ehcoBUTLER modules.
Ijerph 19 06761 g002
Table 1. The participants’ sociodemographic characteristics.
Table 1. The participants’ sociodemographic characteristics.
ParticipantsSexAgeCivil StatusEducation Level
P1(MCI)G1Man69MarriedPrimary school
P2(MCI)G1Woman77WidowedSecondary school
P3(MCI)G1Woman76MarriedSecondary school
P4(MCI)G1Man59SingleSecondary school
P5(MCI)G1Woman83WidowedRead and write
P1(MCI)G2Woman70WidowedPrimary school
P2(MIC)G2Woman87WidowedPrimary school
P3(MCI)G2Woman78MarriedPrimary school
P4(MCI)G2Woman65WidowedPrimary school
P5(MCI)G2Woman80WidowedRead and write
P6(MCI)G2Woman82DivorcedPrimary school
P7(MCI)G2Woman82WidowedPrimary school
P8(MCI)G2Woman71SeparatedSecondary school
P1(D)G1Woman80WidowedRead and write
P2(D)G1Woman69WidowedPrimary school
P3(D)G1Woman78WidowedRead and write
P4(D)G1Woman71SeparatedPrimary school
P5(D)G1Man86MarriedRead and write
P1(D)G2Man87MarriedPrimary school
P2(D)G2Man73SinglePrimary school
P3(D)G2Woman77WidowedPrimary school
P4(D)G2Woman50SeparatedUniversity degree
P5(D)G2Woman72MarriedSecondary school
P6(D)G2Woman77WidowedRead and write
P7(D)G2Woman81MarriedPrimary school
P8(D)G2Man93WidowedPrimary school
P1(C)G1Woman51SingleUniversity degree
P2(C)G1Woman36MarriedAssociate degree
P3(C)G1Man42MarriedAssociate degree
P4(C)G1Woman37MarriedUniversity degree
P5(C)G1Woman49DivorcedAssociate degree
P1(C)G2Man73MarriedUniversity degree
P2(C)G2Woman78WidowedRead and write
P3(C)G2Man59MarriedSecondary school
P4(C)G2Woman72MarriedSecondary school
P5(C)G2Woman50MarriedAssociate degree
P6(C)G2Man58MarriedSecondary school
P7(C)G2Woman45SingleAssociate degree
P1(PR)G1Woman27--
P2(PR)G1Woman38--
P3(PR)G1Woman38--
P4(PR)G1Woman29--
P5(PR)G1Woman33--
P6(PR)G1Man50--
P1(PR)G2Woman25--
P2(PR)G2Woman35--
P3(PR)G2Man39--
P4(PR)G2Man26--
P5(PR)G2Woman24--
C = caregiver; D = dementia; G = group; MCI = mild cognitive impairment; P = participant; PR = professional.
Table 2. The participants’ feedback level scores.
Table 2. The participants’ feedback level scores.
Level of FeedbackScores
MCIDementiaCaregiversProfessionals
Low13–21 points13–21 points12–19 points11–18 points
Medium22–30 points22–30 points20–28 points19–26 points
High31–39 points31–39 points29–36 points27–33 points
MCI = mild cognitive impairment.
Table 3. An overview of the participants’ perceptions.
Table 3. An overview of the participants’ perceptions.
CategoryPositive PerceptionsNegative PerceptionsParticipants’ Quotes
Previous experience with technology, social networks, or psychosocial programsTo communicate, take pictures, use the Internet, and work
Easy to use on tablet
Functions for the elderly person and the caregiver
Difficulty, fear, or dislike of using it
Not widely personalized
P1(D)G1: “…I don’t dare”
P7(C)G2: “… for… calls, WhatsApp, taking a picture… checking things on the Internet… for work…”.
P4(PR)G1: “… Uno Más or Uno Plus… includes a part of care for relatives, medical assistance in taking medication, cognitive rehabilitation and calendar… in tablet format and it was very simple… but you couldn’t individualize it so much…”.
General ehcoBUTLER acceptabilitySimple appearance
Appropriate colors and font
Daily or frequent use (60–90 min)
Emotional, leisure and cognitive benefits
Only use it in a center
Lack of computer skills
Difficulty due to cognitive impairment
Not personalized
P4(MCI)G1: “I need to be entertained and relaxed with something”.
P5(C)G2: “I think they would use it here. If they don’t come here, at home they won’t use it”.
P1(PR)G2: “I liked it, because it has light colors, which do not generate aversion … very simple, that the screen is not full of things …”.
General ehcoBUTLER usabilityPortable
Large touch screen
Economic
Difficulty using keyboard or mouseP4(D)G1: “Tablets are very convenient, because you can take them wherever you want… unless you carry one of those tiny portable computers… if you carry it on your mobile, it is easier…”.
P7(D)G2: “My opinion is… the one that costs less”.
P3(C)G1: “Yes, tactile, the bigger the better”.
General ehcoBUTLER difficulties-Internet is not essential for seniors
Lack of computer skills
Memory problems
Disinterested or unmotivated if it is imposed
P4(PR)G1: “Pay Internet for an application… only for that… if they already have it at home is because they live in a son’s house or because… the council gives access… free…”.
P3(PR)G2: “… they should know what a chat room is, they should be fluent in using the keyboard, in using the mouse…”.
P1(PR)G2: “… If they see it as something imposed… they don’t want to”.
General ehcoBUTLER suggestionsPersonalize it
Large icons
Small amount of text
Physical exercises
More cognitive exercises
Virtual itineraries
Voice command calling
Repeat exercises
Offline/USB content
Pre-training for users
-P2(MCI)G1: “Yes, a program that makes your head work”.
P3(MCI)G1: “… exercises with pedals, walking on a treadmill…”.
P7(C)G2: “… that you can customize it… change the tones, the wallpaper… that it is adaptable for the person… that he/she likes it as much as possible and uses it as much as possible”.
P4(PR)G1: “That there would be offline content… that they would be provided with a USB with the purchase of the application…”.
Healthy lifestyle moduleNutritional advice
Reminders
Appointments noted in one place
Non-independent use
Paper notes are easier
Similar functions between Calendar and Task List
Forgetfulness or disinterest in doing it
P8(MCI)G2: “It gives ideas of what is good for you and what is bad for you”.
P2(C)G1: “… my mother doesn’t care if you tell her what to eat, what to walk, what to do… she doesn’t do it…”.
P5(PR)G1: “… easier for them to take notes on paper…”.
Leisure and free time moduleEntertainment with cognitive benefits
Online procedures
Visit websites of interest
Non-independent use
Risky Internet use
P3(D)G1: “Good… because it is something you see, and you learn… something always remains in your memory…”.
P4(C)G2: “…my relative uses it and I am afraid of it because hotels appear. The Internet is very risky, at least for my relative”.
P6(PR)G1: “… select an application… that would have to be done by an external person, a caregiver, someone who recommends something…”.
Emotional care module Reinforcement of identity
Relaxation
Motivation
Emotional state monitoring
Non-independent use
Non-genuine answers
Virtual environments, not real ones
P2(D)G2: “I would like to, because then those who come after us will see what we have done…”.
P7(C)G2: “Very appropriate… something that gives them peace of mind, and that takes them out of a thought that is wearing them out…”.
P4(PR)G2: “… I think it is much better for them to go to the park for a walk, than to go indoors to see a digital tree when they can go down to the river and see real trees…”.
Social care moduleSocial contact, especially with people who live far awayNon-independent use
Email difficult to use
P1(MCI)G2: “Well, I would like it, because there will be someone you have abroad, children, grandchildren…”.
P4(D)G1: “Good, because if you are also seeing the other caller, then look how nice it is”.
P3(PR)G1: “I can’t imagine them answering the email… I mean, I don’t see that. I think a videoconference is better”.
Cognitive moduleExercise cognitive functions, especially memory
Personalized
Low price
Low economic incomeP3(D)G2: “Yes, anything for the head”.
P1(C)G1: “It’s fine… as long as it is appropriate to the level of each person, personalized”.
P7(MCI)G2: “Hey, if it’s not a large amount, because we are pensioners…”.
Ergonomic designExplain and remember the instructionsArtificial appearance and voiceP4(D)G2: “Indicates what to do; good, good, it orients”.
P4(PR)G1: “… it would be important for the avatar to be as real as possible and less robot-like … for the voice to have the same oscillations as a human person, to have a human aspect …”.
C = caregiver; D = dementia; G = group; MCI = mild cognitive impairment; P = participant; PR = professional.
Table 4. The level of feedback by the subcategories, groups, and totals.
Table 4. The level of feedback by the subcategories, groups, and totals.
CategorySubcategoryParticipants’ Feedback LevelOverall Level of Feedback
MCI D C PR
Previous experienceTechnologyMF (24)LF (19)HF (29)LF (11)MF (83)
Social networksMF (26)LF (19)MF (23)LF (11)MF (79)
Psychosocial programsLF (13)LF (13)LF (12)LF (14)LF (52)
General ehcoBUTLER acceptabilityAppearanceMF (23)LF (18)LF (12)LF (17)MF (70)
Frequency of useLF (19)LF (16)MF (22)LF (11)MF (68)
UsefulnessLF (21)LF (20)MF (23)MF (19)MF (83)
General ehcoBUTLER usabilityUse of computer, tablet, or cell phoneLF (18)MF (26)MF (22)LF (17)MF (83)
Characteristics of technological devicesMF (23)LF (13)LF (18)LF (13)LF (67)
General ehcoBUTLER difficultiesInternet connectionLF (13)LF (13)LF (12)LF (15)LF (53)
Computer skillsLF (13)LF (13)LF (12)MF (19)LF (57)
MotivationLF (13)LF (13)LF (12)LF (14)LF (52)
General ehcoBUTLER suggestionsAppearanceLF (13)LF (13)LF (16)LF (15)LF (57)
Type of activitiesLF (18)MF (23)LF (19)LF (11)MD (71)
Characteristics of the activitiesLF (16)LF (13)LF (17)LF (11)LF (57)
AccessibilityLF (13)LF (13)LF (12)LF (17)LF (55)
Healthy lifestyle moduleCalendarUsefulnessMF (27)LF (21)MF (26)MF (22)HF (96)
Improvement suggestionsLF (13)LF (13)LF (16)MF (19)LF (61)
Task ListUsefulnessLF (15)MF (25)LF (15)MF (24)MF (79)
Improvement suggestionsLF (13)LF (13)LF (12)LF (18)LF (56)
Healthy lifestyle recommendationsUsefulnessMF (27)MF (25)MF (24)MF (26)HF (102)
Improvement suggestionsLF (13)LF (13)LF (12)MF (22)LF (60)
Leisure and free time moduleMarketUsefulnessMF (26)MF (24)LF (12)MF (22)MF (84)
Improvement suggestionsLF (13)LF (13)LF (12)MF (20)LF (58)
InternetUsefulnessLF (19)MF (23)LF (17)LF (18)MF (77)
Improvement suggestionsLF (13)LF (13)LF (12)LF (14)LF (52)
Emotional care moduleBook of lifeUsefulnessLF (21)MD (28)LF (18)MF (21)HF (88)
Improvement suggestionsLF (13)LF (13)LF (13)LF (17)LF (56)
My memoriesUsefulnessMF (22)LF (19)MF (22)LF (16)MF (79)
Improvement suggestionsLF (13)LF (13)LF (12)LF (16)LF (54)
Mood assessmentUsefulnessMF (29)MF (22)MF (27)MF (25)HF (103)
Improvement suggestionsLF (13)LF (13)LF (13)MF (21)LF (60)
Relaxation exercisesUsefulnessMF (25)MF (25)MF (23)MF (26)HF (99)
Improvement suggestionsLF (15)LF (13)LF (14)MF (21)LF (63)
Social care moduleVideo conferencing and emailUsefulnessLF (21)MF (23)LF (19)MF (20)MF (83)
Improvement suggestionsLF (13)LF (13)LF (14)LF (16)LF (56)
Cognitive moduleFree version of GRADIORUsefulnessLF (16)MF (23)LF (15)LF (11)LF (65)
Paid version of GRADIORAcceptabilityMF (23)LF (18)LF (19)MF (26)HF (86)
Amount willing to payLF (18)LF (13)LF (16)LF (18)LF (65)
Improvement suggestionsLF (13)LF (13)LF (12)LF (17)LF (55)
Ergonomic designAvatarUsefulnessMF (22)MF (22)HF (29)HF (27)HF (100)
Appearance preferencesLF (21)LF (17)LF (17)LF (11)LF (66)
Improvement suggestionsLF (13)LF (14)LF (18)MF (23)MF (68)
C = caregiver; D = dementia; HF = high feedback; LF = low feedback; MCI = mild cognitive impairment; MF = medium feedback; PR = professional.
Publisher’s Note: MDPI stays neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Share and Cite

MDPI and ACS Style

Contreras-Somoza, L.M.; Toribio-Guzmán, J.M.; Sánchez-Gómez, M.C.; Irazoki, E.; Martín-Cilleros, M.V.; Verdugo-Castro, S.; Parra-Vidales, E.; Perea-Bartolomé, M.V.; Franco-Martín, M.Á. Perceptions of Older People with Cognitive Impairment, Caregivers, and Professionals about ehcoBUTLER (Tablet Health Care Platform): A Qualitative Focus Group Study. Int. J. Environ. Res. Public Health 2022, 19, 6761. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph19116761

AMA Style

Contreras-Somoza LM, Toribio-Guzmán JM, Sánchez-Gómez MC, Irazoki E, Martín-Cilleros MV, Verdugo-Castro S, Parra-Vidales E, Perea-Bartolomé MV, Franco-Martín MÁ. Perceptions of Older People with Cognitive Impairment, Caregivers, and Professionals about ehcoBUTLER (Tablet Health Care Platform): A Qualitative Focus Group Study. International Journal of Environmental Research and Public Health. 2022; 19(11):6761. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph19116761

Chicago/Turabian Style

Contreras-Somoza, Leslie María, José Miguel Toribio-Guzmán, María Cruz Sánchez-Gómez, Eider Irazoki, María Victoria Martín-Cilleros, Sonia Verdugo-Castro, Esther Parra-Vidales, María Victoria Perea-Bartolomé, and Manuel Ángel Franco-Martín. 2022. "Perceptions of Older People with Cognitive Impairment, Caregivers, and Professionals about ehcoBUTLER (Tablet Health Care Platform): A Qualitative Focus Group Study" International Journal of Environmental Research and Public Health 19, no. 11: 6761. https://0-doi-org.brum.beds.ac.uk/10.3390/ijerph19116761

Note that from the first issue of 2016, this journal uses article numbers instead of page numbers. See further details here.

Article Metrics

Back to TopTop