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Communication

Disease-Related Knowledge in New Zealand Children with Inflammatory Bowel Disease (IBD) and Their Parents

Paediatric Department, University of Otago Christchurch, Christchurch 8140, New Zealand
*
Author to whom correspondence should be addressed.
Cure Kids Chair of Paediatric Research.
Gastrointest. Disord. 2021, 3(1), 23-28; https://0-doi-org.brum.beds.ac.uk/10.3390/gidisord3010002
Received: 11 November 2020 / Revised: 30 December 2020 / Accepted: 9 January 2021 / Published: 14 January 2021
Insufficient disease-related knowledge can be a barrier to the effective management of the unpredictable and lifelong course of inflammatory bowel disease (IBD). Patients with chronic illnesses have high non-adherence rates, with direct clinical consequences. While no single intervention strategy can improve the adherence of all patients, the success of attempts to improve patient adherence depends upon the realistic assessment of patients’ knowledge and their understanding of the regimen. The aim of this study was to assess the disease-specific knowledge of the parents and patients with IBD in the South Island of New Zealand, and identify areas of poor knowledge. Families of children diagnosed with IBD were asked to complete the IBD Knowledge Inventory Device (IBD-KID). Patients 10 years and older were asked to participate along with their parents. Of 110 families, 91 responded, with completed questionnaires received from 153 parents and 66 patients. Overall, parents scored significantly higher (13.64 ± 3.88) than their children (10.03 ± 4.07; p < 0.001). Areas of poor knowledge included aspects of treatment (both conventional and alternative), along with long-term disease outcomes. This study has shown clear areas of concern in this population’s disease-specific knowledge of their disease. This should be addressed through targeted education for both the patient and the parents to improve not only their knowledge, but also their adherence and disease self-management. View Full-Text
Keywords: inflammatory bowel disease; Crohn’s disease; ulcerative colitis; children; knowledge inflammatory bowel disease; Crohn’s disease; ulcerative colitis; children; knowledge
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MDPI and ACS Style

Appleton, L.; Day, A.S. Disease-Related Knowledge in New Zealand Children with Inflammatory Bowel Disease (IBD) and Their Parents. Gastrointest. Disord. 2021, 3, 23-28. https://0-doi-org.brum.beds.ac.uk/10.3390/gidisord3010002

AMA Style

Appleton L, Day AS. Disease-Related Knowledge in New Zealand Children with Inflammatory Bowel Disease (IBD) and Their Parents. Gastrointestinal Disorders. 2021; 3(1):23-28. https://0-doi-org.brum.beds.ac.uk/10.3390/gidisord3010002

Chicago/Turabian Style

Appleton, Laura, and Andrew S. Day 2021. "Disease-Related Knowledge in New Zealand Children with Inflammatory Bowel Disease (IBD) and Their Parents" Gastrointestinal Disorders 3, no. 1: 23-28. https://0-doi-org.brum.beds.ac.uk/10.3390/gidisord3010002

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