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Children
Special Issues
Palliative and End-of-Life Care in Pediatrics
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Palliative and End-of-Life Care in Pediatrics

A special issue of Children (ISSN 2227-9067). This special issue belongs to the section "Pediatric Nursing".

Deadline for manuscript submissions: closed (15 April 2024) | Viewed by 1733

Special Issue Editors

Dr. Holger Hauch

E-Mail Website
Guest Editor
Department of Children's Pain Therapy and Paediatric Palliative Care, Faculty of Health, School of Medicine, Witten/Herdecke University, Witten, Germany
Interests: home-based palliative care; pediatrics; cancer; end-of-life-care
Dr. Julia Wager

E-Mail Website
Guest Editor
1. German Paediatric Pain Center, Children’s and Adolescents’ Hospital, Datteln, Germany
2. Department of Children’s Pain Therapy and Paediatric Palliative Care, Faculty of Health, Witten/Herdecke University School of Medicine, Witten, Germany
Interests: pain management; clinical psychology; health psychology; pain medicine; public health; pain assessment; anaesthesiology; anesthesiology; palliative medicine; health literacy

Special Issue Information

Dear Colleagues,

In the UK, a rising prevalence of children and adolescents with life-limiting diseases has been reported. Thus, there is a need for increasing care in both the in- and outpatient sectors. Especially in end-of-life care, children with life-limiting diseases can suffer from various symptoms, which can have a negative effect on the quality of life This Special Issue invites you to contribute original research articles and reviews on “Palliative and End-of-Life Care in Pediatrics”. The editors are delighted to review manuscripts which focus on symptom management, psychological aspects of care, special needs and problems in end-of-life care with all the perspectives of a multidisciplinary team. If you would like to contribute, please feel free to contact us.

Dr. Holger Hauch
Dr. Julia Wager
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Children is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2400 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • end-of-life care
  • palliative home care
  • pediatric palliative care
  • pediatric oncology
  • cancer
  • psychological aspects of care

Published Papers (1 paper)

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Review

16 pages, 657 KiB  
Review
Quality of Care in Pediatric Palliative Care: A Scoping Review
by Tania Ruiz-Gil and Francisco Ródenas-Rigla
Children 2023, 10(12), 1922; https://0-doi-org.brum.beds.ac.uk/10.3390/children10121922 - 13 Dec 2023
Viewed by 1458
Abstract
Palliative care (PC) enhances the quality of life for patients and families facing life-threatening conditions. While PC is well-established for adults, not all practices apply to pediatrics. Consequently, specific quality indicators for Pediatric Palliative Care (PPC) must be identified. This scoping review aimed [...] Read more.
Palliative care (PC) enhances the quality of life for patients and families facing life-threatening conditions. While PC is well-established for adults, not all practices apply to pediatrics. Consequently, specific quality indicators for Pediatric Palliative Care (PPC) must be identified. This scoping review aimed to identify the variables associated with the quality of care of PPC patients in Spain, focusing specifically on three areas: structure and process of care, psychological aspects of care, and care of patients approaching the end of life. The review was conducted following PRISMA-ScR guidelines. Searches were performed in the PubMed, Scopus, Web of Science, Embase, ProQuest, and Dialnet databases covering the period extending from January 2000 to May 2023. Finally, 35 studies were identified for the complete review. A total of 30 studies include variables associated with the structure and process of care, 20 include variables associated with psychological aspects of care, and 23 studies integrate variables related to patient care at the end of life. Analysis suggests that enhancing professional training in aspects such as communication with patients and families, creating intimate spaces with flexible visiting hours, increasing emotional support, promoting frequent contact with healthcare teams, and transparently communicating about illness and imminent death to both families and minors could improve the quality of PPC. Full article
(This article belongs to the Special Issue Palliative and End-of-Life Care in Pediatrics)
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